Hi, I’m new to the group/website…Seeking any and all advice on pain relief, and hoping to connect with others who have both chronic CH and chronic migraine.
Recently diagnosed with chronic CH but, at age 62, I have 50 years of chronic migraine and occipital neuralgia experience following a TBI and fractured neck. CH, of course, is my worst head pain. I’m now on SSDI (permanently disabled) after “soldiering through” decades of trying to hide my pain from employers. Even without the extra stress of a career, the DAILY CH is still so debilitating and discouraging. I find strength and hope, though, in the hours in between my worst pain attacks. : )
Helps some: Triptans, Emgality, lidocaine nasal spray, Qulipta, Neuro Energy & Focus caffeine gum, neck pillow, Penetrex muscle rub, ice packs.
Doesn’t help: Oxygen therapy (bummer!), nerve blocks (have had for migraine, not specifically for CH yet), ketamine hospitalization (x2), many other RXs, PT, various neurostimulator devices, etc.
Any suggestions? Thank you, and hoping to meet some of you at the October conference.
