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Showing results for tags 'Chronic Cluster'.
I've been a chronic CH sufferer for almost 4 years; 3 - 10 a day, every day during that period, though I did have been able to get kicked into one or two headache-free days when dosing with steroids. CHs have destroyed my career, my finances, and most relationships. Anyway, we all know how dear the cost of chronic CHs are. FINALLY, after exhausting pretty much all avenues and every drug (I've been entirely intractable and resistant to every treatment), a neurologist put me on low-dose Lithium. Within 24 hours, they were entirely shut off! It's only been a few days, but this is the first time I have been able to leave the house without feeling like the 'dragon' in my head was stirring and ready to wreak painful havoc. Honestly, I can feel that something has changed, almost like a switch has been turned off. Who knows if this will last, but for now, it's VERY promising. The dose is currently 150mg, twice a day. I don't feel side effects at all, other than being a little thirstier, but nothing else, yet. If this continues to work, I'll ask if we can start titrating down, a little at a time, until I can take the very minimal dose that works. At these dosages, though, sides effects are unlikely and if they occur, they should be mild and far more manageable than numerous CHs a day. All I'm saying is that, if you haven't tried Lithium...TRY IT! This is from a man who has tried EVERYTHING. Peace!