Let’s Step Up Advocacy for Cluster Headache Sufferers – Join the Movement

[ericrobert23]

Hey Clusterbusters,

If you’ve ever felt the frustration of being misunderstood, misdiagnosed, or just ignored because of your cluster headaches, you're not alone—and it's time to change that.

We’re working on a coordinated advocacy push this year, and we need passionate voices like yours. Whether you want to write your local rep, share your story publicly, or support our awareness campaigns, there’s a way to get involved.

Ideas we're working on:

• A 2025 virtual awareness week

• Advocacy training webinars

• Congressional outreach efforts

• Patient testimonial collections

Drop a comment if you’re interested in joining the effort or have ideas of your own. Together, we’re louder—and stronger.