Migraines since 2001. Can mushrooms help me?

[Kevin Kelly]

This is my first post to the group. I actually posted it over on the Clusterbusters side, but they referred me here. So maybe someone on the migraine side of the forum can help me out. After meeting with my neurologist at Yale New Haven hospital today, he suggested that I try asking some questions about taking mushrooms for headaches in this forum. He seemed to think that there was some validity to the use of mushrooms for chronic migraine. I do not have cluster headaches, so will clarify that right away. I have, however, suffered from migraines since 2001 when II was diagnosed with a spontaneous spinal fluid leak. Worst pain I could imagine for about 6 weeks. Bedridden. Eventually things improved, but have never resolved, so I have been searching out specialists from Hartford Hospital in CT to The Philadelphia Headache Center in PA to Yale New Haven in CT. I recently made 4 trips in 6 months to Duke University Hospital in NC earlier this year where the fabulous doctors there found a particularly troublesome leak called a venous fistula, actually several of them. They were repaired and I felt better for about 10 days, then the headaches returned. So, my working theory is that my brain has become accustomed to sending pain signals to my nervous system, even without a physical malady. I am now doing EMDR therapy and trying various anti-anxiety medication to try to break the pain cycle. Some progress has been made, but I am far from where I want to be, thus my post. I'm wondering if there is someone out there who might be able to guide me in this new world of potential treatment using mushrooms. I know next to nothing about them, though have tried them in college many years ago (I am 65 now). Thanks for your attention and I look forward to having a conversation about how to move forward. 

[Kevin Kelly]

Was hoping I would get some responses from the group. Is there anyone out there that can steer me in the right direction? There seems to be so much information to digest as a newbie. My goal is to find out the quickest way to get started experimenting with mushrooms and what the ground rules are. I read the info within the blue banner and read the newbie page. Just hoping for some input from members of this group who might be able to share some advice or experiences. Thanks

[Topher]

Yes, they work.  The anti-inflammatory impact is significant.

I also do not have a cluster headache.  I have had a constant headache, 24/7/3365, always, even while sleeping, since 7:34 am March 16th 2009. 

Botox takes 2-3 points off of the pain.

Qulipta takes 2-3 points off of the pain.  

Shrooms, get rid of 75% of the pain for me.

It is not fun.  S&S is critical.  Knowing the strain and dose is critical.  Knowing what you are doing before you do it is critical.  Where to get the information, not sure, the government does not allow proper research.  

 

Not in grams, but on potency.  Some have 1,000 units, some have 19,000 units, per gram.  

 

Watch every video you can. 

[Kevin Kelly]

Thanks for the reply. I appreciate the advice. Actually any advice is appreciated ! Anyone else out there have any suggestions? I'm trying to get more information on dosing. How much to start?? I'm thinking .2 grams. Have purchased a good scale and am looking at BMK and Ghost/Blue Meanies to start. Any comments ?