29 years in remission and still counting

[Andrew6420]

Hi community,

I had cluster headaches for 20 yrs from the age of 15 to the age of 35. I went numerous times to the doctor looking for a diagnosis including to the emergency dept to find out what was going on.No one could give me answers.So I ended up self medicating,with ac and c.Whenever an attack was occurring within minutes or seconds I would take the ac and c.Yes I would get some pain at the beginning of the attack but 20 minutes after taking the medication the pain would start to go away,then I could resume my life but being still exhausted after the attack was over.

My last attack was unbearable at the age of 35 no ac and c would work,so after about 20 hours into the attack I decided to try and run this attack off.I ran for a good straight hour.I came home exhausted laid down in my bed fell asleep.Woke up and it was gone forever so far,29 years and counting.But I started cycling daily not long after my last attack 20km a day for years.Im still in remission after 29 yrs Horrah!!!

Hope my story helps someone out there that is suffering with this condition.The pain there are no words to describe it.

 

[Andrew6420]

To add to my story I became a vegetarian/ vegan right after my last attack.

[Andrew6420]

Just to clarify ac and c is available over the counter here inCanada its Acetaminophen with codiene.

[Andrew6420]

Thats Tylenol#1 with codeine.

[Andrew6420]

It was very hard to get anyone to help or listen during the late 1970s to the late 1990s They thought I had sinus problems,even the emergency dept thought I was making up stories.I didnt even know till recently what I had wrong with me I thought it was the afrer effects from a blow to my head when I was 15. I thought I had a concussion.But I do have sleep problems to this day,but no attacks .Thank God