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Showing content with the highest reputation on 06/14/2023 in Posts

  1. Hey Jimmy! I am nocturnal too. My verap worked best if I took one at noon, then bedtime (9-10pm), and the last one in the, middle of the night when I woke up. I have NO idea why your doctor said it is for daytime attacks only! If you are nocturnal, you will get most of not all of your hits at night. That does not preclude using Verap at all. Since you are to take them three times a day, you are already on the Short Acting Verap that is best for us. So, no need to change your script. Verap, at the 240 you are taking, worked for me. It killed the first cycle I was having when I started it with a Pred Taper added at the beginning of my treatment. It prevented the next cycle, Then my dentist told me to stop taking it due to a gum issue caused by the medication. I did and a cycle started that fall that was not stopped, even when I went back on the Verap. Due to low blood pressure, I could not take a higher dose, so I just stopped taking it altogether. Now that you have your O2, do you have a good mask? Non-rebreather? That is the one you need and no concentrator either! When you head to the O2, are you hitting some caffeine? Any kind will help a lot! Iced coffee, Red Bull, Energy Shot, V8 Energy. Most of us are not kept up sucking it down at 2am either. I would not down a full Red Bull personally, but some do. The idea is to down the caffeine quickly and huff your oxygen till the hit has passed. Then stay on the O2 at a lower, comfortable flow for another 5 minutes or more so the hit does not come right back. And as a nocturnal, I slept in a recliner to get any sleep at all. Just laid it back partway, kept my head above my heart and piled pillows around for support. It made sure that I woke early in the hit and the treatment worked faster and better. Hope this helps.
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