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spiny

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Everything posted by spiny

  1. Thanks. I agree, He seems rather empty of knowledge to a great degree. Mentions D3, but has he tried it? O2. No mention. It is nice to have a article out there though, so I am grateful.
  2. Hi Cromestar! I just wanted to be sure that you are taking the co-factors with the D3. They are very important and you need the lot for it to work well. You need the K2, Omega Three, calcium, etc. that go with it. Can you fill us in which ones you are taking? Pepcid is for excess stomach acid. It is given here for reducing the acid release when eating that causes some people pain. So, anti-acid, not antihistamine. Perhaps one of the other meds given is prone to causing tummy issues? It is over the counter here now. As is Benadryl. It is disturbing to see all the people who are
  3. Stinking shame they won't let you read it without joining up!! Sorry CHF, I tried!!!
  4. Hey Madam, What units is the '216' in? nmol/L or ng/ml? The values for the different units are very different. 216nmol/L is a low number. 216ng/ml is a high number.
  5. Tony, I saw two genes listed on FB a year ago now. At least. I am delighted that the research is moving forward! I do have the migraine and sleep-wake ones. Won't it be interesting if D is affected by the same genes, or some of them? I think so!!!! I also find it heartening that combined, they found more genetic information to add! And the blood work you submitted may have been factored in too! They want all the info that they can get and verify.
  6. Hey Nugget! Welcome to the group. Batch - @xxx is the main guy for the D3 Regimen. If you know that you are low, then start with 10,000/day - minimum. Along with all the other co-factors. They matter!! I would do this for a month and get my levels tested again. What is your D3 currently? My first try was not perfect either. However, I have been cycle free for years now thanks to the Regimen. So, I am big believer in it! And yes, I am sure that it is the the D3 preventing cycles. All that I need to do to check that is to stop for two days and then deal with the hits that follow. Fun
  7. Hi Madam! I sent a pm to Batch. Hopefully he gets back and answers this for you. He is the expert on the D3 Regimen. ATB!
  8. Bilal, I have been taking them daily for years now!! In my experience, there is no worry about the Regimen failing if used year round. I take 10,000 of D daily, along with the rest. Batch is getting a trial set up to record the effectiveness for others.
  9. My husband and I take all of them, including the Quercetin and Turmeric. My blood work is where it needs to be too. Well, D3 is at 105, but they know why. I am pretty sure that Batch recommends both of them now with COVID out there.
  10. Hey Tiffany! no contradiction to me. You are correct. An MRI will not show nerve damage. It will show compression. Or that is my understanding. Maybe if the nerve atrophied, it might show as smaller than normal. I have had three over the years and all returned with 'No nerve compression present.' That does not mean that there was not a problem, just that compression of the Trigeminal nerve could be ruled out, so that helped rule out Trigeminal Neuralgia. They look for compression of the nerve where it comes through the skull. An MRI is usually recommended to rule out other condit
  11. Hi LLL and welcome! A MRI will tell if there is nerve compression. It is a good idea to have one to rule out 'other stuff' in the first place. ATB!
  12. Oh my g..!! How can they do that??? Sorry Tony, but this just rips at my heart. So stupid for the medico's to wait a freaking week + to fix a problem they created. JERKS! Hugs to you and your friend!
  13. Why the strike outs there Pebbles?
  14. Tony, congratulations on your new family member!! I pray that all ended well in that department!! I am delighted that you killed that cycle too! It is criminal, in my book, to penalize you for 'doing what had to be done'. Big hugs my friend!!!
  15. Nice that you are getting improvement Mit!!!
  16. Hi Khoogeveen and welcome! I have not tried a move to help my head, but we have joked about doing that or going to The Bomba Shack en masse for relief!! That is a little place south of the US that serves very special shakes.
  17. NC. Mountains!!! West. But hey, I was in Hickory when Charleston sent us a hurricane over a decade ago!!!! Had two tornadoes go past my house - one on each side. Good ole Hugo!! My house was the only one with all trees still standing.
  18. You are most welcome!! The regimen can be a life saver!!! Yes, some take longer, but I a delighted that you are sticking with it to gain the full benefit!! ATB!!!! You are not far away from me!!
  19. My first try with the D3 was not a success story. I was in the middle of a viscous cycle. In addition, when I added the B vitamins, my tongue peeled That was in response to the B12, which is notorious for causing that mess. However, I noticed that my hits ramped up more slowly and were a bit more mild. That was nice. The next summer, I had my D3 checked in August and found it to be about 63ng/ml. In the trash for working in the sun all summer! So, I began the regimen again, minus the B. My cycle never showed, Granted, I did 'other' stuff to head it off too, but it was the first year with
  20. CHF provided the link for Licorice Root protocol, so you have that now. Definitive answers on can you take melatonin with MM, since that is a recurring question. How much Verap can a person be on and still get relief? Currently we think that up to 360 as a daily dose will not block. The straight and skinny on that will help! Like why does x amount block and b amount not block? The 'Why' would be awesome Which of the antidepressants are compatible? Many are on them in some form. This link: has a lot of info that we run with. It seriously needs an update!!! There are
  21. Jeebs, the Epi proved to be a provoker of Hell for me. Repeatedly! I cut my thumb with Machete cutting corn. It was sewed up no problem. But the 'hand specialist' was an idiot and it took 4 surgeries to fix the mess that he made. Anyhoo, I woke from surgery and was fine. No biggie actually. But, he pumped me full of epi. The hospital was 2 hours from home and they gave me no meds as it was supposed to stay numb for 4-12 hours post surgery. That was not true for me. It came alive in less than an hour and I had no pain meds and a lot of pain. I had 10 hits in the following 24 hours. My per
  22. Hey Ricardo! Are they wanting questions on how prescribed meds interact with MM and such? Questions on which meds are okay with MM and RC? I want to help, but am somewhat at a loss here. The only big one I know of off the bat is the licorice root protocol and MM. What is safe, if anything. Please, give me a bit more to go on. Thanks!
  23. The 1 in 10 has changed to 3 in 10 and is now at 4 in 10 I believe. I find it unfortunate and infuriating that doctors don't keep up with their own field!!! But, CH patients are few, so I sort of understand it. There are at least two studies in the US currently that are testing Magic Mushrooms for CH, so that is a huge plus! As a woman, you will find that you almost certainly have to advocate for yourself. And almost all CHer's must advocate for themselves too. Have you tried an ice cold energy drink at the first sign of a hit? It can really help. I can't tolerate them, but
  24. Hi Eli. Unfortunately most doctors don't understand Clusters, including many Neurologists! Many years ago I was told NOT to take Birth Control because of migraines. And i was also told that women did not get Clusters as well. Well, how wrong that was!!! Many doctors need educating on Clusters. I did HRT with no issue regarding my Clusters. Perhaps let your Gyno know that Clusters are NOT migraines, but are often treated the same because they don't have 'meds' for Clusters, just hand-me-downs from migraine patients. He should let you do a trial run at least. You might get more h
  25. In addition to the 2 every 24 hours, there is the insurance to deal with. Often they will only 'allow' 9 or 12 a month! So, you might want to check on that so he is not in for a shock when a refill is denied. ATB!
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