spiny

I get the formaldehyde mess. I looked at one place years ago Tony, with a 7 year old in tow. His eyes were bright red in minutes and mine were burning. Nope, cannot live here! I told my doc once that I needed something for my mold and mildew allergies. I was told 'Leave the planet.' So, that is a problem. I know that you think that in the dead of winter there can be no allergens. I used to think the same. When I moved from the deep south to the near north over 30 years ago, I had the idea that my kids and I would suffer less from allergies and asthma. I was informed that actually, that was wrong! I had moved from an area with one allergy free month to one with no allergy free months! It depends on the winds transporting pollen junk to you apparently. The winds can blow mess from the Sahara around the world. Do you have access to Trelegy for your asthma? It has been the biggest help for me over the years. It gets my O2 above 90% if I am up and moving around and that is a huge help!! It is good to hear from you again Dude!! Give the little one a squeeze from me.

This is a delightful read for a Monday morning kat!! I am so thrilled for you. Enjoy your new found freedom!!! You have definitely earned it

Oh lovely!! Wonderful news. Preparation works!

I agree Denny. And why this way and not BOL-148? We made it in as an "orphan" disease only because they are restricting it to Chronics. If all Clusterheads are included, we are at about 250k - 300k total the last time I checked and that exceeds the 'orphan disease' restrictions. It holds the line at 200k. And the Orphan status 'grants seven-year market exclusivity to drugs that treat rare diseases.' So, getting that status gives them extra marketing power too. Why for kids? Yes, WHY! Money I suppose. Most do not take a recreational dose, they take what they need and it is pretty individual at that. I wish them the best and the best for every CHer. NOT just Chronics! So will Episodics have to fight the hard fight to get this script? On another note, this may show them that a Chronic needs a LOT of medicine while Episodics can usually get by with less. It may bite them in the end. So, add in the over-anxious kids to keep your funding coming perhaps? IDK.

Go for another week of loading and see what happens. It could be that you are still too low on the D. Shadows respond well to ginger as stated above. And not sure where you are, but the pollen is coming out in many areas and Benadryl would be a big help there. Additionally you may find that you need 15k of D everyday, not 10k. It can make a huge difference if your maintenance dose is too low. I take 15k in winter and 10k in summer. 10k in winter and a cycle kicks in.

We all find our own little 'method'' that works best for us, at that point in time.

It seems that the men hang onto the 'Leonine facial featured male' of about a hundred years ago!! And MOST Neuros are???? MEN! It will wind up being 50 - 50, as will Migraines I think. Men having alcohol as their main trigger just shows that more men were drinking with their CH than women. Given the same alcohol, it is most likely that both respond the same way. As for the length of cycle or being chronic, it may be true. But who knows at this point? I do know that until I forced my husband to watch Hollywood and see Dan slam the lamp. Then the other (who was that?) guy peeling his face off on the carpet, he thought that I was over-reacting to pain and that a man could and would cope better than I was. That bit of film flipped a dang switch in his head that needed to be thrown! I will be forever grateful to those guys. I will say that I think they need to get off the hormone train! Men can't have Migraines because they have different hormones from women and women get Migraines. Women can't have Clusters because they have hormones, but the wrong ones. I have CH and my son has Migraines and Ice Picks. Hmmm.

Were you able to find one Wake? You are in a tough place, so no surprise that it was hiding like that. Have the slap backs eased off now? Are you getting some P. F. time now? I really hope so.

About two threads up, on this page, you will find the current list.

Yep. The old rock and hard spot! You do what you must.

It seems that a hit an hour or two later is considered a 'rebound' by many when it is actually another hit in my mind. For me, a rebound occurs right away if I don't do some post breathing. We need to also consider that CH changes and our number of daily hits can change over time too. My hits come 15 minutes apart all night if not treated. So, an hour or two P.F. is pretty heavenly. And that is only gained if I sleep in the recliner, not the bed. Prone is BAD! An M60 tank will last about 28 hours at 1LPM which equals 1680 usable liters in the tank. I think that we may have been told a bit under the full 28 hour mark when the COPD set-up came into the house for my father-in-law. So, you need to plug in what your flow rate was and for how long. At 15LPM the whole time, you will get almost 2 hours from that M tank I think. So, the easy way is to write down how long you ran at X flow and how long at Y flow, then subtract that out. I ran 5 minutes at 15LPM and 5 at 2LPM., so I used 75 + 10 = 85 liters used. That leaves 1515 liters left. The less O2 that remains in the tank, the lower the actual pressure coming out goes. I can crank it to 20LPM and be getting only 5LPM as the volume drops. Less internal pressure = less pressure to the regulator and less coming out of it. It does not work out perfectly as the tanks come in pressurized at 2200PSI-2500PSI, but it gives you an idea of how to calculate it out. I think my personal worst was a M tank lasted 24 hours.

I will be interested in your results too Kat. I have a relative suffering from the same thing. It is annoying when doing fine work for sure!

Nice to read this Bosco! A good nights sleep can work wonders as we all know here! Very happy for your step back from the pits of hell!! Yes, it is easy to lose track of your CH requirements when there is worry and there are health issues in the house. But I'm pretty sure that you will better keep up with it the next time. Practice and all that.......... Here's a funny for you

Ok. I'm up for few hours now and betting that you are better today Bosco!! The mess up of your sleep schedule is likely the devil in the soup, along with missing a dose. It is hard, but ya gotta hang on to that stuff during stressful times. I am super guilty of blowing it off and paying a price, so I have had to learn this lesson a few times myself. May you wake to a new start with a smile today Bosco!!

That clean up was a J.o.b. I'm sure! But, I bet that Abby feels better. Doing that job twice? WOW!! I would have needed peeling off the ceiling just seeing that it had to be repeated!! Hopefully the rest of your day was relaxing Bosco!!

That sucks about the mattress. I'm hoping that with your 'Abby Doo comes first' that she recovers quicker than anticipated too!! Hmmm, another 6-7 weeks. Order one of those beds in a box delivered. The kind you can 'use for a year and return if you don't love it'!!

Love you too!!

Yep and I was too! Currently, not so much Shaun. I could stop taking one pill and drop 20 pounds in a few weeks. But it is the one keeping me going, so I'll deal with the chub for now. LOL!

Boy, a 3' dog can take up 6' feet without even stretching!! And they do claim the whole bed too by going sideways! Hubby's dog used to holler to go out in the snow to pee at night. He would get up, open the door, walk across the porch to open that door and find the dog gone! Back in his bed, in the middle and growling when he tried to get back in it himself!! At was a game to the dog. It was worse if he actually went out, because he did the same thing, but with snowy feet and tummy. Nice cold wet bed then! Buy an air mattress maybe? Those rocks are miserable!! How long will this need to continue?

The lift-assist harness is awesome!! Twenty years ago, we used a log carrier under a pup to help my neighbor with their dog post hip surgery. That lovely corset would have been a huge help! She looks pretty bright eyed and bushy tailed Bosco! That is wonderful. May this operation bring Abby many years of pain free running for joy! Did she hog the bed all night? It looks like she intends to keep it to herself here!!!

Kat, my Neuro prescribed it for me about a decade ago. He handed me the script with 'Ask on your site how this works.' My reply was 'I'm 15 pounds underweight. Where is your trash can?'

This is sickening. Topamax is awful and not a frontline treatment to start with. He has tried 'everything' with you and appears to be just going down his list of 'headache meds' to hand to you. That is awful and no way to treat a human being. I too would ditch it. Likely do a taper for safety sake, but I am not sure that is required with Dopamax. I'm guessing that yours are one sided based on the surgery, the diagnosis and the neuro. Is that true? Right there with you on the sinus surgery. We are female, so it is migraine or imaginary to many Neuros, so next up is often sinus issues! And no, the surgery did nothing here either. Nor has it helped countless others. Just like having teeth extracted has not helped. CHF is right on the O2 for CH. If it is Hemicrania, then Indomethacin is the drug of choice. And Jeebs is correct in that you need a headache specialist neuro, not a regular one. Hemicrania can be ruled out by a test drive in the Indo. If that is not it, then you need proper, best results medication and O2 for killing a hit. Are these headaches constant at the same level of pain or does it rise and then recede repeatedly? At times and over the long haul, it can seem like one headache all day when actually it is many of them. That stuff matters in a diagnosis. Have you had an MRI to check for abnormalities in your noggin? That should be at the top of the list!! For CH, it comes back all clear. Question: Are you taking HRT? Has it been adjusted based on your personal needs based on blood work? A sudden drop in hormones can create big problems for us and some of those are expressed in headaches. Some OBGYN's went nuts several years ago and refused to treat patients with HRT since it did not improve bone density. What they did not know and what was NOT reported is that most of the 'placebo' patients dropped out since they were so miserable, so all results were invalid! The yanking of HRT for any woman into menopause was horrid.

I suggest some caffeine or ginger for those shadows. Either can rid you of the annoyance of having one. Some use Excedrin Migraine as it has caffeine in it. I had a long reprieve too - ten years. Since their return, my cycles have been 6 months long. Unless someone dosed me with epinephrine and that prolonged two cycles - adding an extra two months to each. The beer test? I wait for two weeks pain free to go there, but that is me. Others will try it sooner with different degrees of success. ATB!!!

Keep us posted Bosco!! Thinking of you two today.

Nope. I have not thought that you silly man! I am old and do not waste my brain thinking about such stuff Shaun. I have enough to think about: Remember my pills, remember to eat, remember to feed the critters, remember to answer you, remember to devil Jeebs, remember to go to the loo, remember to finish my coffee.............................. Leave age out of it and get new glasses. LOL.