spiny

Bosco, your insurance should cover it for CH! And they usually have a partial bottle left over to hit any spot you request. You know, cause it has to be trashed after all. Why are you footing the bill?

Thanks David! It is nice to finally know what notes can pierce my brain like that!! Apology not needed. I have always found it odd that the one frequency is so horrible and wondered about the how and why of it. Now it has a name and that is progress! Pink Floyd uses it in some of their recordings too and I have to skip over those! So, you are in great company!

Give it two weeks Bosco! You will be able to see the full effect then. I am sure they told you this already, but it is fun to watch a furrow vanish. Two birds and all that, right?

eswart, your photos are terrific! The color correction is perfect! That is hard to accomplish. Thanks for them all!!

I feel the sour taste of pain in the beginning. What is that frequency at the 7 minute mark? That viscous vibration I hear in music , especially when dosing that makes me change the tune. It is only associated with my clusters and puts my body on full alert, bordering on panic. That vibration means PAIN to me. It is very interesting and does offer an approximation of the life we lead. I suspect that a CHer would get it right away. Additionally, everyone dealing with the robot who answers the phone will get the super infuriating physical response to the robot who prevents you from speaking to a real person! Nicely done.

I would not think so, but anything is possible with only a little information. I would suggest that you see your doctor with those symptoms. How long have you been on the D3? I personally cannot take the B Complex, but that is due to an issue with oral B vitamins for me.

Thanks for the Meme Jon!! May your issues be resolved quickly and in the right direction! Get better and rejoin the fray soon!

It really is terrifying when your cycle shows up Kat. Unless you are having a problem with the Verap, your best chance of success with it is to stay on it till it lets you down.

I went off at the insistence of my dentist, after being on it for a year. It never worked again for me. Boy, I was ticked too!

That is wonderful Kat!!

I tried that once, under duress. It sucked. I no longer drink many cups of coffee a day now, but that morning one is needed for the reason stated here - withdrawal headaches! Boy, they really do suck too. Best of luck to you Kat! I'll not give up my morning cup of coffee till I can no longer serve myself I suspect.

We do know that low D makes for worse Covid, don't we? Everyone should be adding it! So, yes, it might be due to the D that I take daily. Or it is just location or really great luck! All three of my kids had it. But they do not live close.

I have been doing the very hot bath method since before I joined here. I start out with about 2'-3"s of very hot water. For me, a cool cloth on my Ch side helps too, As the water cools, I add more hot. At the end of the hit, I have a normal bath in depth and still quite hot. As in the bottom half is bright red from the heat. I thought of this when pondering blood vessel dilation and heat. It has to be done very early in the hit as xBoss said. Just run it as hot as you can stand. My theory is that it dilates the blood vessels on your bottom half, thereby reducing the pressure in your head. Another trick I have used is to down some caffeine about 20 - 30 minutes before an anticipated hit. That has often prevented the first hit of the night. They come like clock work, so I know when to get the caffeine in for me. Might be worth trying.

Sorry that I can't help Chloe! I have not had Covid fortunately!

You must be special Jeebs!! You got a letter! LOL

Amazon Smile has vanished from my current experience. When I log in to Amazon Smile, it redirects to Amazon.

Hey Rod! It would take a person devoted to manning that job for starters. Additionally, Amazon has some pretty time consuming rules for businesses and the cost of the product often has to go up to accommodate the demands from Amazon. Keeping it in house so to say, keeps the cost down. It is a thoughtful suggestion! What type of 'influencer' are you referring to?

Royster, the redneck bag is great to get the O2 supply up to where you need it. One word of caution is do not advance set up the bags of O2. I have built many of them myself and was cautioned by Racer1_NC not to leave them lying around due to the possibility of an explosion: based on the possible leak of O2 that would raise the ambient O2 to a dangerous level. So, I would start filling a bag with O2 when I was downing my coffee. That gave the slow regulator time to start filling the bag so that I had plenty for each inhale. Then, when I was doing my 'post breathing', I would turn off the regulator and pull down the contents of the bag by breathing it. That keeps the environment safe. Storing the O2 in the bags is a bad idea. I strongly suggest that you do the same! The bin bag is not going to contain the O2 for a long time without it escaping into the atmosphere. That plastic is permeable. BE careful! So, suck it down and leave it empty until you have a hit to deal with. In your situation, I would leave the bag on between hits to save time and tubing. If you make the tube long, then you have plenty of room to pace. I don't recall reading if you are doing 'post breathing' or not? That is when you stay on the O2 and breathe normally when the pain is gone for another 5 minutes. The 'Y' connector that Racer showed you is a brilliant idea! That should offer a much better chance of killing a hit. So hang onto doing Post Breathing!! Additionally, many find that keeping some cold caffeine at the ready is a huge help. I do! Iced coffee in the fridge, as well as V8 Energy. Most find that cold is the best when hitting the caffeine. Some will take an ice cube and put it on the CH side, holding it on the palate as it melts. A bit less dramatic than your bucket dunk. BTW: When do you prep that bucket of ice? When the hit is starting? I would expect that you would do better to spend your ramp-up time huffing O2 as opposed to doing anything else! Thye faster you hit the O2, the better your chance of killing the hit. If you know when your first hit will come, then you can take evasive measures by downing some caffeine before the hit is expected. That can, at times, eliminate the first hit. One aborted before it starts is always a bonus! You can also put your feet or lower body into a shallow bath with very hot water. Add more hot water as you adjust to it or it cools down. Perhaps place some ice on your head. I use a cool washcloth as the 'cold' of ice is too much of a shock to my system, but others swear by it. The idea is to open the blood vessels of your lower body and reduce blood in the upper parts - mainly your head. Questions: Has O2 ever worked for you? Have you had an MRI of your noggin in the last 5 years? How does it feel to have a CH in the center of your head? When does it side-switch during a hit? That part of your description has me baffled. Yes, some do side switch during a cycle. Some have one cycle on one side and then another on the opposite side. But what you describe is different.

“The emergency prophylactic treatments available have been developed for other diseases and aren’t optimal,” “Our researchers are already making progress in the field, and we aim to get closer to a final solution to this medical mystery,” This is awesome Tony!!!

You submitted a manuscript to them Tony? Cool! This is encouraging news. One more avenue being pursued is a great thing! It is a medical school in Sweden apparently, so that is good too!

Hi Suze and welcome! Sorry that you need us, but most happy that you found us! How high does your regulator go? How long do you stay on it for a hit on average? I have literally conked out with my head on the tank a few times, but I don't feel 'sick' from using it. Shaky comes with the territory I think. Many parts of CH can cause you to feel shaky I think, from lack of sleep, to lousy eating patterns, etc. Hyper-ventilating will cause the shakes for many too. How long do you stay on your O2? How high does your regulator go? As in can you kill a hit in less than 10 minutes?

I have done the same Tony. My base D3 intake was increased last year from 10k to 15k. That is surprising for Trelegy since it is marketed here for asthma too! Sorry you cannot try it. Finding a place that is new enough and dry enough not to have mold or mildew can be hard!! Thanks for the sweet squeeze!!

You can read of suggestions for kat on her recent trip and what her experience was a little way down on the board. That has all the most current data already input kat92's post is two posts down from yours. You are currently in Asia and the return trip is the worry, correct? First off, search for and stash several Energy Shots if you can find them where you currently are! Sorry for the new cycle start Michael!! That really bites when on a trip! Do you have a doses pack of Prednisone? Can you get one? I would want that to use for a week and try to get a break in the cycle before or if that is too late, then anytime before flying! The highest dose is the first day and by the 2nd day, I am out of pain till the dose drops lower. It will provide you with a break from the cycle. More to follow I am sure.

You are right about that Racer!! I'm from the northern swamps originally. Crawdads rule!

I have Tinnitus, so ringing is daily. Mine is caused by living in a house with an elder who was very hard of hearing and refused hearing aids. His 'old ones' did not work well, so he was not wanting to use them at all nor invest in more expensive ones!!! And he was old, so the tube was his sole entertainment for the last several years of his life. 16 hours a day of your house blasting TV worse than a depressed teen, with a play list, will destroy your hearing. So, no help at all. So sorry! But, getting up nightly with an ailing pet gets nerve wracking. Been there! You are so concerned for them, but after a while, you get concerned for yourself too! Only a few weeks to go Bosco, and that nightmare will be over. Then you can rest and relax for a change. You have earned it too! I look forward to seeing Abby all healed and walking on all fours!! That means that you are getting well earned better quality sleep! Praying for you and Abby sweetie. I'm really southern, so sweetie is a compliment!