Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation on 01/16/2025 in Posts

  1. I suppose "satisfactory" is the key word in what you wrote. Certainly there have been possible explanations offered, particularly with regard to REM sleep (Exploring the Connection Between Sleep and Cluster Headache: A Narrative Review - PMC). According to one study (attached here), 2am is the most common time for attacks, but midnight, 1, and 3 are right up there. (Rather than a specific time, it's probably more accurate to say ~90 minutes after falling asleep.) (At least as far as I can tell, the attached study actually tells us almost nothing, since of course people get multiple attacks and they all are counted here.) However, as many as 25 percent of people with CH don't get nighttime attacks, and the number of reported attacks (in the study) at 2pm and 3pm (outside the time range of your theory) isn't all that much lower than the number at midnight or 1am. Well, but why would it want people to be awake and experiencing excruciating pain, or use excruciating pain to wake them? And why, if maybe we all, or most of us, have a biphasic instinct wired into our brains, are so few people afflicted with CH (or just generally, why do so few people wake up, with or without pain, at those early-morning hours, or ~90 minutes after falling asleep)? And why does a daytime nap so often bring on an attack? These questions are not to dismiss your idea, which I think could be part of the puzzle, but to say that there are surely more complex things going on and to agree with you that it would be nice if there were "a neurologist specialising in both sleep and cluster headaches out there who latches on to this." Of course, there are whole cultures that have a biphasic sleep pattern, though not exactly the kind you have been referring to. A siesta in the afternoon along with some nighttime sleep (usually less than 8 hours) is pretty common in many Latin American and European countries. I guess someone could look at CH incidence among those populations. Rozen - Cluster_Headache_in_USA-2.pdf
    1 point
  2. I really just need to vent tonight Like a cruel joke i relapsed after 10 totally symptom free days. All the way from k0 to k7 in a matter of minutes mid interview. The 5 day rule failed me. Maybe my dose wasn't as dialed in as I thought maybe I need to dose sooner either way i relapsed into another cluster. I'm really sad. I was doing so well, so full of hope. Today was a series of insane issues on so many fronts that I can't even list them all. It was a miserable day. I think the cruelty of this disorder isn't in the intensity of how incomprehensibly painful it can get but just how broad the contrast of it all is.... Without any warning mid sentence it was like the devil himself was punching me in the face to collect my lunch money. . I guess I just needed to bitch and moan. Vent. Scream into the void. I just need a damn job... This last interviewer today told me "you're not 16 anymore, this part time job isn't going to support your family. I have half a mind to tell them not to hire you because I feel that this wouldn't be in your best interest to let you have the position. I would recommend you apply for the distribution centers" and honestly it pissed me off .how is that NOT discrimination? What does my age have to do with anything ? Why can an interviewer tell me what I should and should not be allowed to take pay wise or Take the only opportunity for gainful employment i've had in months and tell me i'm better off essentially unemployed and still searching while they possibly hire someone younger with less financial needs or tell me that I SHOULD be able to get better pay so I shouldn't be allowed to have lesser pay... At this point i'm getting desperate and it feels like the only way i'm going to stay a float or get ahead is doing something sketchy like mowing lawns off the books or something stupid and I really don't need the headache. At this point i've stopped openly throwing a fit. It doesn't do me any good. If anything I just end up hurting myself and damaging things. Tonight I tried distracting myself working on my computer and possibly caused even more damage in the process which is really saddening because I was really happy with how it was Today I locked myself in a dark room and just cried because I don't see any end in sight. Not to the pain, not to my balance and hearing issues, and not to my lack of employment. I feel worthless, useless, and broken beyond repair. I've tried playing good baptist but at this point i'm even questioning my already waivering faith. I'm sure SOMETHING good will come but at what cost and when? The house we're in is literally falling apart, we can't keep up with the bills, can barely keep food in the fridge. It's all a mess... And now I have to be reminded that Equal Opportunity is a true crock of shit and I feel foolish for even trying anymore.
    0 points
×
×
  • Create New...