Texas Cluster

Bonkers, I would just hate to see any of us make a mistake and end up in the grey bar motel.. Its hard enough dealing with the beast in a comfortable environment much less some where we don't want to be... and any official with in the law are swore to up hold it so I would be worried saying something and the wrong person getting wind of it.. gotta look out for that Dudley Do Right or Barny 5...lol It just sounded like people are talking to freely about it to other's they don't know and I hate seeing bad things happen to good people like all of us.. Its just a concern and in no way saying you are doing wrong just be careful   Darrin Texas Cluster

what is it that needs to be translated Carole? just curious

would love for you all to read this, even has an audio if you just want to sit back and listen. Hope for Headaches: A Conversation with Headache Expert Peter Goadsby I am also going to post it in "what causes these" thread http://www.ucsf.edu/science-cafe/conversations/hope-for-headaches-a-conversation... Darrin Texas Cluster

would love for you all to read this, even has an audio if you just want to sit back and listen. Hope for Headaches: A Conversation with Headache Expert Peter Goadsby I am also going to post it in "what causes these" thread http://www.ucsf.edu/science-cafe/conversations/hope-for-headaches-a-conversation-with-headache-expert-peter-goadsby

we all have bad CH's, I mean Karma, you're not alone birdman. ;D Is this helping anyone? if so I would like to keep this thread from falling to far down the list. Darrin Texas Cluster

Back to topic on this thread..I agree with showing uninformed people, friends and family by showing them the link to the YouTube of clusterchuck, but you know what...when I am there and watching it with them..I last about 2 minutes and start crying (40yo and cries like a baby) then get up and walk away..as I do..they ask if I am getting one now..I tell them no, its so hard to watch someone go through it when you feel and know exactly what they go through. my wife took a video of me and I didn't even know it..seeing it makes me crash, its hard to see someone go through pain when you fully understand what it is they are going through expectually when it's you on the video. I also feel like we knock Dr's down alittle more than we should (I am just as guilty on this) but it's all about ignorance we are ranting about here, they are trying to help and that's what they do..for most conditions their patients they can treat cause it's treatable.. they are doing what they can within their power legally and we have to at least thank them for trying, I know my Nero cares and wishes he could stop them for me..but we all know it's a hit or miss on our condition.. I have heard of some folks getting total relief from verapamil.. so lets all think about them at least trying. think about all this as we keep this site growing..every one of us are getting the word out there.. eventually this riddle will get answered when the right person gets wind of it, we have several working on it as we speak, but the CH community is growing and something will be found sooner or later.. so I let the ignorant be ignorant, at least I know one more person has heard of it and its growing they cant leave us suffering like this, If an animal of any kind was acting like we do when under an attack they would put it to sleep quickly. I am just glad we have who we do at Harvard and know that they wont leave us hanging and the folks that donated that 6million to research of headaches..at least we know Dr.s and scientist are working on getting us the best treatment and finding the cause. thinking I will just start carrying a copy of that colleague letter as a hand out so I can save my breath if they cant understand after reading that..screw'em don't need them. we have no choice but to deal with CH no need to add anger with it. I talk alot dont I Â Â Darrin Texas Cluster

someone correct me if I am wrong, but I remember learning that zomig was okay to use, its the verapamil he should detox from.. the verapamil made my clusters worse in numbers and in severity..I had to detox from it just cause of that,and the ergotomine but then Dr's put me on Lyrica after that while I was here learning about busting and I detoxed that fast...don't think I even took it but 10 to 15 days..then went straight to busting and PF now for the most part..shadows are showing now.. but if I remember correctly zomig was alright, the nasal 5mg one shot nasal spray..if we learn its alright Angel go get that coupon I posted in General category here.. I keep them on hand in case I cant get to the o2 Darrin Texas Cluster

why didn't anyone reply with "where in the @#$^# is the coupon?..lol I feel like a moron for posting that thread and not even leaving the link to the coupon..lol sorry and here it is... http://www.zomig.com/zomig-coupon.aspx   Darrin Texas Cluster

Hey yury66, bust in all you want..that's what we do here..lol welcome to the family of friends always sorry to see of new sufferers but glad you found us your in the right place. yes they are available on line and a few links to the sites are found here, I got mine from http://psychoactiveherbs.com and were all viable so far, 400 for $49 and it was a fast easy process,they knocked them down and I am having some great days now and I am also a chronic sufferer. I hope this helps and feel free to pm any of us or ask in a thread like you did..someone here will see it, no matter where you put it allot of info on the dosing and daily updates on how it's done and works.. check out mine and davids threads here on our journey of PF time using the RC's mine is "My order is in , let the busting begin" davidsj35's is under " And so my experiment begins" both are pretty informative and if you have any questions feel free to ask. hope you find what you need. Â Â Darrin Texas Cluster

that was from my thread, so I posted it here thinking you would see it faster..lol Carole please dont be scared, look I have been chronic for three years my life has been destroyed nothing is the same this beast has beat me down so bad that I was scared to leave the house.. now lets not sit and wait for it to run it's course, learn more about busting, get your feet wet and try it. I would really hate to see you end up the way I did by ending up chronic with out knowing if RC's could have helped prevent it..but I hear way to many stories of how it knocks out cycles..keep the seeds on hand and when they return you will know how to and not have to endure it all over again..you and your daughter can enjoy one another instead of her witnessing it all over again. think about it this way...taken the RC's is no different than being sober. .lol we are all her to support you and we want you in PF time just as much as you want it.. Â Â Darrin Texas Cluster

I couldn't find the thread I left my zomig post on so I will just start another..lol now I have used this and it has saved me some cash..its $35 off I have been lucky that with my insurance my cost is $35 so its been free for me and it can be used once a month for 6 months. hope this helps all those that use the zomig   Darrin Texas Cluster

bet it would be nice to have fame but at the same time I would be worried how word is getting around and who is learning this..I know that most people understand why we do it but I would hate to see anyone get in trouble cause of youngsters chatting about what we do. :-X Maybe I should of asked where all this is happening before expressing my concerns, I know some places it's legal to grow a certain amount.. Â Â Darrin Texas Cluster

I was talking to a neighbor one day and he had a friend over and both were drinking (explain a cluster to a drunk) my neighbor who understands and knows about the RC's asked me how I was doing with my headaches and his buddy popped off you get headaches too?..I told him I get head pain that is called cluster headaches. he says to me "Dude I can help" with that said I had hopes this guy knew something I didn't (like finding clusterbsters) he went on saying how his headaches just kill him (now I am thinking he is a sufferer also) never knew anyone in person that had them and thought for a minute that I have a new friend..turns out he gets sinus headaches and when I explained what a cluster was he was telling me that my pain couldn't be anything like his.. I asked him if he had the Internet at home.."yes" I told him to go research CH's three days later he came to my house and apologize for being an ass that night, that he had no idea what he was talking about and to get in touch if I ever needed anything. I figured a good story like this might lift a few eyebrows..lol I have been fortunate enough that my family did just as much research as I did and has helped me every step of the way...I cant tell you how much I wish that all CH sufferers could have what I do aside the pain..but all the understanding and help from family and friends. when I told friends I am busting and what it was, and that there is no known cause or cure they all understand and say the same thing "you got to do what you got to do to get a decent day and sleep" even had a few wanting to bust with me..lol for those that have no care about them I tend to avoid saying anything to them and just leave them in their own ignorance no sense trying to explain anything to someone that could care less. Darrin

He was my favorite on that show and I hated to see that happen to such a good man. And that was a great "last catch" of a show. my thoughts and prayers for him and his family                 [smiley=engel017.gif]Hats off for Captain Phil Harris [smiley=engel017.gif]   Darrin Texas Cluster

what I have read on your plan of action seems to be on target Carole my first dose I used 10 seeds, I was scared just like you, but I am here to tell you that you have nothing to fear..the worse for me was the emotional and exhaustion I had the day after the first 2 doses but compared to the attacks, its a walk in the park... I now know that 30 or more is the way to do it..never tripped kinda felt like I wanted to talk allot to someone..lol.. so try and have a friend on hand or maybe the mother and daughter night of chit chat..lol Just be prepared for post dose attacks, I at first thought it was making it worse and I made a mistake choosing that route but it gets better and I will stick with the RC's unless they get up to a kip10 again..when that happens I will pull out the big guns that I was fortunate enough to receive from a an anonymous individual that I can also call an angel oh and I just crushed mine in to bits let them soak in 4 ounces of water for 10 to 12 hours and drank the whole mess in 2 swallows adding a little water to get the rest of the slug off the bottom to get it all down.. its wasn't that bad and I have bad gag reflux..lol so it cant be all that bad..lol I wish you the best of luck and hope it works wonders for you. Cant wait to see your posts after the 3rd dose   Darrin Texas Cluster