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  1. This is the same study for Signifor I was talking about. Still havn't heard back from them since they started the hunt for my medical records.
  2. Yea, not sure how I feel about it yet. They said its for residents in NY and CA so I thought I would go through the motions to find out more about it. I didn't get that far CHfather, the part about stopping within 30min. That too doesn't interest me personally. Ill let you know, how it goes or what they say. They're digging up my medical records which will be a difficult task. Not familiar with Octreotide but Ill have a look, might fill me in more about Signifor if similar.
  3. Is anyone taking part in this new study? Its for a drug called Signifor (Pasireotide) Pasireotide (SOM230, trade name Signifor[2]) is an orphan drug approved in the United States[3] and Europe[4] for the treatment of Cushing's disease in patients who fail or are ineligible for surgical therapy.[5][6] It was developed by Novartis. Pasireotide is a somatostatin analog with a 40-fold increased affinity to somatostatin receptor 5 compared to other somatostatin analogs. Pasireotide was approved for Cushing's disease by the EMEA in October 2009[7] and by the FDA in December 2012.[8] Pasireotide LAR was approved by the FDA for treatment of acromegaly in December 2014, and had been approved for this indication by the EMEA one month earlier.[9]
  4. Bigtime

    My Story

    Bejeeber, super thanks for that. Your totally right, I get hopeful but am constantly let down with progress this round. Best to step out of my box / comfort zone. Especially on the good days. I think the Melatonin and 15000mg of D3 regimin is helping, but I'm not in the clear. Shadows and a low level this evening that lasted a good 40min. Yes, I know in the back of my head that I should Macro rather than Micro. Its just finding the time with Work and kid around. I have enough for 5 Macro days. May start tomorrow and If I have to dose in the evening and stay up late then it is what it is. Question, When you got some vitamin L, did you just one tab one day? Or multiple days? I've been looking into farming for myself and I reached out to my farmer back in NY where I used to get them. He of course gave me some pointers, info on books, and dvds to get going, but he also reminded me we talked about smoking DMT. I know there has been talk about it and heard of it working for one. Plus side, is its instant effect and that its done in 10 min. Down side is you're literally not a part of this world or reality for 10 min.
  5. Bigtime

    My Story

    So, No need to take the Melatonin to keep me more in sleep if the beast is trying to pop though at night? Seems like the slightest thing to wake me up ie: to piss, would start the beast to come through.
  6. Bigtime

    My Story

    I don't ever take it. I can sleep through anything and never have a problem falling asleep. I read it here so I tried it yesterday for the the first time. With the beast being an exception to sleep.
  7. Bigtime

    My Story

    Thanks Urs, Everything was the same, same side, same areas of pain, only difference was the acuteness of the pain over the past couple weeks. Sharper less vice like and more searing, localized. On an AMAZINGLY better note, I had a pain free night and nothing this morning! I upped my D3 yesterday to 15,000 mg, was my 3rd day of dosing MM, took 10mg melatonin, and 50mg of Benadryl. Also probably consumed at least 10 liters of H2O all day. Had some phantom pain around 10pm just before I took the Benadryl and Melatonin. Then I was out. Ill dose again MM later today when I get some work done. As for the D3. Ive been taking 600mg magnesium, omega fish oil's, 600mg calcium, 1000 mg lyposphric vitamin C, and my multi vitamin. Keep you posted.
  8. Bigtime

    My Story

    Hey all, Thought I'd finally give back and share after pillaging content and research for years. Thanks for all the help though out and I will do my best to stay active here. My Ch's are different now. I'm 38. Been having CH's since I was 15. Diagnosed right away by a friends dad who was an ER doc. Text book episodic. Imitrex and vereprimil back then. Then injections, mostly just dealt with it. Every year Jan to April, 6-8 weeks, usually 1 a day maybe 2 if I was drinking. Always middle of the night, unless drinking. Puke and pass out was fairly standard, pain has always ranged from 5-10 with occasional shadows. Started smoking in my 20's and still do. Fast forward to 12 years or so ago when I came across the busters using MM. Didn't have to twist my arm. Had tons of connections so they were easy to get, all upright citizens. I managed to keep from getting my cycle pretty well with them. I think maybe 2 mid level cycles in 8 years. Busted a cycle twice. Or at least at onset. During one of those attacks I got an MRI, went to a neurologist, etc. More of the same. Vereprimil imitrex etc. Scoffing at my alternative medicine suggestions. I stopped using those meds after I learned the adverse effects with the MM. Never have I tried Oxygen, never got a prescription and was always too busy to deal. But that was this time that I should have started. I also started using Redbull's during an attack to some success / help. Also smoking a cig would give me that headrush and would dull or abort an attack occasionally. Started using H2O method then and still do with some results. Same with quick fitness. 25 pushups as fast as I can, stretch and breath hard for 5 min, do push ups again. Never enough to raise my core temp but enough to get the heart racing. That was then. Then remission for 5 years. I moved to California, started spending a lot of time in the ocean, doing yoga, eating well etc. all that text book cali stuff. So I contributed it to lifestyle change and stopped dosing MM. Which I had been doing every few months. Then they came back. Its been 8 weeks now. In like a Lamb, scared the shit out of me. Now the lion is here and they are really scaring me. They started Super mild, maybe 3-5's at most. Dosed right away with MM. Usually just micro dosing to have body high without visuals. Did that once. Had to travel and yes, flying is a trigger. Started D3 regimen. Micro dosed again a few times. Went 6 weeks with 2 or 3 days on and 2 or 3 days off. Maybe 1 or 2 a day, evening and then early morning. Then about 2 weeks ago they hit full force and have gotten worse, 7-10s. Back to puking. Since then I've upped the H2O intake, and have now eaten more MM every day for the past 3 days and will continue for a few more. Bought melatonin, benedryl, sinus busters, 5 hr energy, and will try the hot water tonight If I can. Been laying off the yeast / gluten and alcohol. So whats weird now is that Ive been getting one in the evening, dinner time or a bit later, realizing now its when I relax. Then they just don't stop at night. Like 3-4 a night with phantom in between but just enough for me to sleep until the next starts. The worst is always the last, anywhere from 5am to 7am it hits. Today's went for 1 hr 45. They were never like that before. Wondering or trying to remember if they get worse towards the end of the cycle? I eat MM in the morning first thing at onset. In the lip. Empty stomach, with vitamin C packs and OJ. Chug the cold brew, Start the pushups and breathing, pacing, and a cig at first hint of a light at the end. Hoping I can bust through this time. Or try and get an Oxygen script tomorrow.
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