Not only is there immeasurable triumph in the accomplishments of the group as a whole, both AHDA and CB, but anyone who attends might just discover that they experience a personal triumph as well.
Many of you know me from days of old, many of you have never heard of me, but my story is the same as most of you, with one exception. I used to be extremely active with CH advocacy, until in 2008 while getting a glass of water at my kitchen sink, I fell for no known reason, with no warning - a fall from a height of 5'4" and regained consciousness to the life of a Traumatic Brain Injury patient. It sidelined my life, and my passion - CH advocacy - but then I learned something that is, as yet, not common knowledge among either patient or practitioners groups - through the DoD program - CDMRP Congressional Directed Medical Research Program - my own doc has been working with the vets at Ft. Bragg who have returned with Post Traumatic headache, as a result of post concussive blasts or traumatic brain injuries - and of those afflicted, nearly all have become chronic migraine and/or chronic CH sufferers. There's so much we still need to know. This lit a fire in my soul, and although I have not traveled more than an hours drive on my own since 2008, in April, I drove 7.5 hours, by myself, after much much anxiety and despair, so that I could attend HOH and contribute my personal story to the cause.Â
It was my personal triumph - I overcame not only CCH, but PTSD/Post Traumatic HA and the multitude of obstacles and disabilities that a TBI patient suffers from. I never could have done it without the support of everyone involved, but especially from our esteemed leader and event co-ordinator. I'm proud to say I was a witness to so many of our contingent achieving such amazing gains and results. My hats off to you all - I admire your constitution, compassion, commitment, dedication, determination and downright stubborn streaks to ensure that your voices are heard
I add this bit of trivia to this thread, to encourage any and every member to try to attend HOH, and to get involved in every joint venture project that comes our way - with numbers we have great power, and we WILL change the world.
Cat