Hi,
I am so glad I came across this site. I no longer feel like no one understands my pain. I started suffering from CH when I was 24. I got often attacks until I was 36. I had 4 years remission from age of 36 to 40. I had another 10 year remission and got it again at 50 which was two weeks ago.
Oxygen, Prednisone and Verapamil work for me in controlling the severe pain, however I almost always have lingering burning feeling on back of my neck and on my face. Has anyone experienced this and if so how they get rid of it? Any medication helps? Does Oxygen help to get rid of this feeling?
Fred