I don’t have much to add to the board except to say that after five nearly cluster-free blissful years (with a handful of smaller CH incidents here and there), the cycle is back on and last night had worst, most painful CH since 2015. First time that my partner saw me in full throes of pain and have found it hard to explain to him what I’m going through. Dosing has worked for me before and is what seemingly worked to keep me cluster-free for 5 years so I’m going to try again tomorrow and hope I’ll be back on track. Wish me luck.
Hi, busters. I'm a cluster headache sufferer who is also a journalist, and I am writing a story about cluster headaches and potential cures. I was hoping to speak to some of you about your success/frustrations with busting CHs. It can be either on or off the record. I'd love to hear from some women, too! From what I understand, the condition is much rarer in women. My contact information is available here. Please shoot me an email if you'd like to talk.