gotheadache

Moxie girl, My pain hits everyday at 3pm and 3am. There was one episode where I was in near constant pain for 4 days straight. It has been 15 months from when the pain first appeared and my cycle does not seem to be breaking, so I am assuming that it is chronic. My hormones were tinkered with before my first bout of CH too. My hormones were always whacky and I was misdiagnosed with PCOS for the longest time. The Endo then figured it was not my ovaries, but suspected my adrenal which also turned out to be untrue. He then realized that my prolactin levels were all over the place (sometimes low and sometimes high) and so put me on Dostinex which messed with my cycle and ended up getting pregnant. I am on my way to see the neuro now, and I will ask her if she thinks that the dostinex could have triggered my CH as opposed to the pregnancy.

Yes, I have a tank with rebreather mask and a valve that goes up to 25 lpm. I usually stay at 20lpm for 10 mins before tapering off. It worked great when I first started using it, but since then it helps with immediate relief and the pain returns 30 mins - 1hr later and it is worse than the initial attack.

Thanks for posting this. Prior to my CH diagnosis, I have been seeing a Reproductive Endocrinologist for 3 years who ran many hormonal assays and came to the conclusion "Something is off with your pituitary". I will push my neurologist for a scan.

I have an oxygen tank, and I am scared to use it because it gives me wicked rebound headaches. Let me give you a little more background: My CH started about 1.5 years ago, and I thought it was a sinus infection till my ENT doctor told me to see a neurologist. Before I could see the neurologist, I found out that I was pregnant. The neurologist refused to prescribe anything till the 2nd trimester and pretty much said that she can't guarantee that Verapamil or Sumatriptan will not harm the baby. My neurologist was convinced that my CH was pregnancy-related and that it would disappear after I gave birth. It was truly a dark point in my life where I considered having an abortion and also jumping off a tall building. This is when I came acorss Batch's D3 regimen and I did a modified version of it. I took my prenatal vitamins and 20,000 IU D3 per day. I had my D3 levels tested throughout my pregnancy and it remained around 30 ng/ml. I gave birth to a healthy child 5 months ago. And let me tell you, my 18 hours of labor was a breeze compared to a CH attack, my obgyn was astonished that I declined pain killers a day after my c-section. Now that I am 5 months postpartum, I decided to ease my D3 intake and got hit by an CH a week later. So I guess I am stuck with it forever :-[

I am a long time lurker, but finally decided to post. My CH never goes away, but I get immediate relief from d3. Right now my PCP wants me to discontinue D3 because it is at the high end (148 ng/ml). So I skipped my dose and I can feel the dreaded jaw pain and the tightening at the back of my head. I broke down and took 8000IU this morning, but the pain is worsening and I usually don't get any relief until I take 20,000 IU per day. The doctor also checked my calcium levels and it was normal.