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Jl924

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Everything posted by Jl924

  1. thanks..... Yea... like I said, no major hits in 9 or so days likely from the prednisone which btw in high doses makes you hallucinate slightly... makes colors more vivid... I joked with my friend that I was in the Predni zone I actualy bought a good mask but am having trouble hooking it up (not to the tank but itself mind you) , there werent any instructions and I am terrible at fiddiling with little things (I know that sounds weird) yea... everything has had some effect. Gavapentin seemed to get rid of night hits which were really just the worst becuase for me lack of sleep is big trigger, but how can I get sleep if I was getting night hits right???, nerve block helped my neck which was really killing me, the vicodin helps the constant shadow more than any over the counter but I use it sparingly, so I would say the opposite and that everything I have been prescribed has done something. Bottom line. until we know what causes it we wont be able to treat it. Sure... people have had luck with the busting methods here but we dont know what it is doing and why. But as I said I have almost a constant shadow or light CH. It kinda goes away if I take migralex or advil or vicodin, but it cant be good for me to be taking that much advil and aspirin every day... Im hoping that it just sort of goes away.... but I dont know. I also supppose there could be some mental aspect to the constant shadow, but then your just going to drive yourslef crazy.
  2. oh right.... I discovered this board second... Im JoshL924 on the other board. I guess I neglected to post in the getting to know you Im 28. Im a grad student, My first ever cycle began in early to mid feb. The other board was a godsend and helped me alot initially... I ran the gamut, oxygen imitrex, zomig... occipiital nerve block... I did a 10 day taper of prednisone and other than shadows that are almost constant and eventhough they arent as bad as a ch I still am pretty immobilized in what I need to do... its hard to study and go to class when you feel like your head is in a vice or just a very light CH... and all the docs say to me about that is "better than a headache right?"...... great, thats just what I want to hear when I tell someone I can preform the functions that I need to in order to yknow.... graduate, get a job, actually be able to work at said job. Im a huge music guy. I play guitar and bass although I havent picked up either in 5-6 weeks due to the ch. I just have no desire to since the CH began.... love going to shows. seen lots of phil (you guys like the Phil quintet, I thought in alot of ways that band hand stuff over the dead and I meand GD... yea I said it) I was pretty excited to find people with CH that also like the dead etc.... I havent tried any of the busting methods of this board quite yet becuase.... well.... I have my reasons. so there ya go.... anything else you guys would like to know.... I wrote a whole summary of everything I have been through up till now and its on the other board.... where I describe my hits lengeth severity pattern..... etc... Ill post it here in the getting to know ya area later on.... let the words be yours Im done with mine
  3. pm me if you guys wanna talk furthur about this
  4. ahhhh yes some deadheads on this forum... Im only 28 but Ive seen some things. No never caught the dead, which doesnt matter, they were pretty rough throughout the 90's and late 80's post jerry coma anyway any of you guys dabble in phish at all.... Im at like 80 shows and counting.... Maybe my ahem years of phishing and going to other shows kept me away from CH as well.... Or maybe, did you guys ever think we did this to ourselves?
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