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About Sheri

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  1. Sheri

    Patient Registry

    Hello all, I was diagnosed with Sunct in 2012. In 2013, a diagnosis of Local/Focal seizure syndrome was added. In February, I filed for SSDI. The caseworker had a difficult time finding Sunct in her system and ran my SSDI on epilepsy and Sleep apnea. I, of course, was denied because my 13 pages of medical evidence I brought with me to my appointment was directed at Sunct. I have been unable to drive for a few months now. The denial said, I was not severe enough to warrant disability. Last Friday, I went in to the hospital to do a brain map in the hopes of showing where in my brain activity is ignited. Good news! The seizures are aura related, along with the numbness in fingers and toes, facial paralysis, and confusion. I never knew what an aura was until last Friday. I was on 3000 mg of Keppra and the seizure specialist said I was suppose to lower the Keppra to 500 mg 2 times a day and get CBT therapy. I looked at her with confusion. I possess a BA in Psychology & a minor in Criminal Justice, as well as, an MBA. She said with CBT the aura symptoms will be improved, but, you still can not drive. Oh, you need to go see your neuro in two weeks and poof I am dismissed. Mind you, I am still experiencing everything I have been for the past 3 years. The Sunct is in remission THANK YOU JESUS! Question: Do you think I should hire an attorney to appeal the SSDI decision? I get so confused, I am not sure if I can do this myself. I need help! Thanks everyone! - Sheri :-[