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ClusterBusters

TheVerbalArchitect

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About TheVerbalArchitect

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    Advanced Member
  1. TheVerbalArchitect

    Re: V.A. Update!

    Yeah so far its great,just having it around does seem to scare em off sometimes. The V.A.
  2. TheVerbalArchitect

    Re: V.A. Update!

    8 LPM , so far it seems to be aborting,no attacks since I got the O2. RC seed dosing might be helping too. I am no longer on any other medications The V.A.
  3. TheVerbalArchitect

    Re: V.A. Update!

    Six E-tanks up in my hizouse! Boo Ya Ka! You guys are great! The V.A.
  4. TheVerbalArchitect

    Re: V.A. Update!

    I already faxed in the articles today,I hope that didn't piss em off to the point where they wont prescribe it Im calling the supplier tomm to see if it all went through. Peace The V.A.
  5. TheVerbalArchitect

    Re: V.A. Update!

    Yay today I got to talk to the crazy nurse! What happened to the nice one from yesterday! I told the nurse today I need 15 LPM,she said "No!" .7 LPM is already a lot she said,refused to listen to me,so I said give me your fax number so i can show you documents stating why I should be on 15 LPM. Another frustrating day Thanks Guys The V.A.
  6. TheVerbalArchitect

    Salvia works! For me

    How long have you been doing this?
  7. TheVerbalArchitect

    Re: V.A. Update!

    Cool guys, I will make the call tomorrow.
  8. TheVerbalArchitect

    Re: V.A. Update!

    The nurse called back,she is the first nurse I have talked to that has taken me seriously. My neurologist still wanted me to do one more trail but the nurse insisted and made the O2 order! Only problem is it will be 7 lpm. Will I need to get a diff valve? I know I need at least 15 lpm. Me happy The V.A.
  9. TheVerbalArchitect

    Re: V.A. Update!

    CH Father ,I took no offense to any of your posts You and everyone else here has been a great help to me and others. I called my nurse this morning and she said I had to come in for ANOTHER trail! I kept my cool and told her how concerned I was with everything,she said she would see if my neurologist would start me on O2 therapy at home A.S.A.P. .Waiting on their call now. I'm sure she will just call back and say I need to come in for another trail but I WILL be calling in everyday until its resolved. If nothing can be done I will be going to another doc or going to a local supplier. Most days I'm stuck bed with clusters,no motivation, don't feel like dealing with all the B.S. . My mom has always been in the mix and it drives her crazy. I called her yesterday and told her how badly i needed the O2.She is on board to get it for me by any means possible. Thanks to everyone,for everything, priceless. I know it doesn't seem like I have much control over my situation yet but having a place to go like this brings my spirits up. Yes my days are still filled with attacks but you guys give me the motivation to keep on truckin. Thank You! And to Agent Orange, the texts and phone calls have been great. You are one of the many on here that will do anything to help others. Dedicated 110% to help. Till next time The V.A.
  10. TheVerbalArchitect

    Re: V.A. Update!

    I will be making a few calls tomm. I will do what I can.I have been trying to be as aggressive as I can without pissing my docs off to the point where they wont help at all. I have done a lot of reading on diff. doses. I plan on going higher,just trying to work my way up slowly. Sorry I cant type more not feeling well
  11. TheVerbalArchitect

    Re: V.A. Update!

    K thanks AO, I will wait a couple of days for my next dose. The V.A.
  12. TheVerbalArchitect

    Re: V.A. Update!

    Did my o2 trail that they wanted me to do on Friday,now I'm just waiting for my appointment on the 15th of next month.I'm hoping to god they prescribe it to me.I'm bringing the articles in when I go. Doing my second dose of R.C. tonight (40) seeds. Attacks have been frequent (3-4) a day plus a beasts every night. Just gonna hang in there for now. One Love The V.A.
  13. TheVerbalArchitect

    Re: V.A. Update!

    So I'm a troll now ? I'm confused
  14. TheVerbalArchitect

    Re: V.A. Update!

    CH Father, I also thought today would be the day.
  15. TheVerbalArchitect

    Re: V.A. Update!

    Brew,wasn't under that impression, I know it can take many doses Went in this mourning to do my o2 "trail" worked on my attack. Now gotta wait and see. "Are your hopes for getting O2 from other sources fading" No, I just thought I would go along with getting o2 from my neuro first,now that the "trail" is out of the way they should get rollin on getting me my o2. I still have to wait two weeks though till my next appointment,on the 15th of Feb. To see my neuro. I will continue dosing on seeds and the usual Red Bull,planning on trying Fun Guy in a month if the seeds have no effect. Wish me luck The V.A.
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