I'm not much on writing but here it goes. I have a brainstem AVM.
Has bled 5 times and three craniotomies have not been able to remove it. I'm disabled and had to retire at 30 years old but I'm still alive and happy. Well, not so much happy when I'm in a cycle. My AVM has nothing to do with the clusters. Just be careful about which meds you take. DO NOT TAKE TRIPTANS OR DYHYDROERGOTAMINE. I just did the RC seeds last week then blotter acid yesterday and it has ended my cycle it seems. Scared the hell out of me but I survived. There are other options and the AVM is just something easy to live with if you make a few minor changes Mine was first diagnosed/found in 1987 and it can't possibly be in a more difficult place
I'd be happy to talk to you and share my info if you'd like. Just send me a message and I'll send you my number. Best of luck to you. All will be great!
Robert
vaph@comcast.net
