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CariJ

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  1. CariJ

    2015 Clusterbuster Conference

    Our Conference Keynote Speaker: Dr. Brian McGeeney Dr. Brian E. McGeeney is a neurologist at Boston Medical Center and full time faculty (Assistant Professor of Neurology) at Boston University School of Medicine. Dr. McGeeney is a Diplomat of the American Board of Psychiatry and Neurology, with the added qualification of Pain Medicine. Dr. McGeeney is also boarded by the American Board of Pain Medicine and holds the United Council on Neurologic Subspecialties board in Headache Medicine. Dr. McGeeney will be the keynote speaker.
  2. CariJ

    2015 Clusterbuster Conference

    Spotlight on Our Conference Speakers: Dr. Larry Robbins • Dr. Robbins is a neurologist specializing in headache, with certificates in pain management and psychopharmacology. He was Assistant Professor of Neurology at Rush Medical College from 1992-2011. He holds the title of Master Psychopharmacologist and Master Clinician through the Neuroscience Education Institute. • He is a Fellow of the American Headache Society, as well as a Fellow of the American Association of Integrative Medicine. • In every year from 2002-2014, Dr. Robbins has been named to the “America’s Top Doctors†list created by Castle Connolly and now published in U.S. News and World Report. Also, Dr. Robbins is one of a select group of doctors within that list who are considered to be among the top 1% in the nation in his specialty. Chicago Magazine lists Dr. Robbins as one of the Top Doctors in Chicago. • In 2008, the American Academy of Pain Management selected Dr. Robbins as the only recipient of the “Janet Travell Clinical Pain Management Award,†given to one physician per year. • Dr. Robbins is the author of four books: 1) Management of Headache and Headache Medications, first and second edition. The book, written primarily for physicians, enjoyed much critical acclaim; the second edition was one of the top selling books in its class; 2) Headache Help, with Susan Lang, is for the patient. Headache Help, one of the best-selling books on headache, was also out in two editions. 3) Headache 2013: A Comprehensive Guide to Headache Treatment, Including Advanced Approaches for When Nothing Has Helped. This ebook, which contains highlights of Dr. Robbins' extensive writings, is for doctors and patients. It is an overview of cutting-edge headache treatment and a definitive resource for headaches that are difficult to treat. Updates to the books are available through www.chicagoheadacheclinic.com. 4) New Book: Advanced Headache Therapy: Outpatient Strategies (2015). For doctors and patients, this new book (published by Springer) focuses on refractory or “difficult to treat†headache patients. Cutting edge treatments are presented for migraine and cluster headaches. An extensive section is devoted to psychological conditions. There is a major chapter on headaches in children and adolescents. In-depth case studies are discussed. • Dr. Robbins has written more than 250 articles and abstracts. His research ranges from psychological aspects of headache to the immune system to advanced MRI studies in chronic migraine patients. • Dr. Robbins is involved in a great deal of headache research and lectures extensively. He usually lectures on the management of chronic headache, as well as psychiatric conditions in headache patients. • Dr. Robbins started the section of the American Headache Society, “The Refractory Patient What to do When Nothing is Working.†• In 1986, Dr. Robbins founded the Robbins Headache Clinic where he treats patients with various types of headaches. Dr. Robbins, Nurse Practitioner Brooke Phenicie, NP-C, and the rest of the clinic staff treat patients in a comprehensive manner. Each patient receives a good deal of time and attention. Treatment is highly individualized and offers a wide range of options. • The educational site, www.chicagoheadacheclinic.com, is edited by Dr. Robbins and his staff. More than 15,000 visitors a month use the site for information on headaches. The site summarizes the best headache articles of recent months, and has been doing so since 1999. The most popular section is the blog, which is updated daily. The archives include more than 1100 blog posts. • Dr. Robbins and Illinois House Representative Carol Sente’s efforts led to Governor Quinn’s signing of HB 5431, the Mandatory Concussion Education for High School Coaches and Athletic Directors, on August 19, 2014.
  3. CariJ

    2015 Clusterbuster Conference

    Spotlight on Our Conference Speakers: Dr. Stewart Tepper: Dr. Stewart J. Tepper, Director of Research for the Center for Headache and Pain, is Board-certified in Headache Medicine and Neurology. He was an Associate Clinical Professor of Neurology at Yale and Director of The New England Center for Headache in Stamford, Connecticut prior to joining the Cleveland Clinic in March of 2008. After an MD from Cornell, he took his Neurology residency at Harvard. He is an Associate Editor for the journal Headache, and American Editor for the journal Headache Care. He is a professional reviewer for over 20 journals includingCephalalgia and Neurology, and has published over 200 peer-reviewed manuscripts, editorials, and books. He is Director of the Headache Therapy course for 2009 for the American Academy of Neurology and Co-Director of the autumn meeting of the American Headache Society (AHS), serves on the Education Committees of AHS and the International Headache Society (IHS), and belongs to multiple societies including AHS, IHS, American Academy of Neurology, and National Headache Foundation. He has participated in more than 200 clinical research studies. He lectures nationally and internationally on all aspects of headache medicine. His interests are in patient care and education, with research in the causes of headaches, their treatments, and in patient outcomes.
  4. CariJ

    2015 Clusterbuster Conference

    Spotlight on Our Conference Speakers: Mr. Tyler Mann: Tyler Mann is a documentary filmmaker out of Austin, Texas, specializing in documentary work - but is also well-versed in fictional narrative style. Born and raised in a small town in Oklahoma, just north of the Texas border, Tyler had dreams of making it into the film industry in Hollywood. Nearly ten years ago, an invisible and debilitating disease threatened to derail Tyler from seeing his dreams come to fruition. Suffering from sudden onsets of excruciatingly painful headache episodes, he researched, self-diagnosed and finally headed to the emergency room - where he was shocked to learn the doctor had never heard of cluster headaches. Since then, Tyler has been on a mission to bring awareness to the disease. He has made his dream happen; he's in the film industry. He shoots and directs TV shows and films. His work can be seen on A&E, TLC, The History Channel, Animal Planet, The BBC, Nat Geo, CNN and more. As a filmmaker, Tyler doesn't let the headaches define him. He lives them every day - but it isn't who he is or how he wants to be known. So now comes the hard part for Tyler; to tell the story of what it's like to wonder everyday when the next cluster will hit; what it's like to live in your bathroom, pounding anything from ice and oxygen to pharmaceuticals and mushrooms into your brain, just to make the pain go away. At some point you stop caring about life and all that matters at that moment is what will make the pain stop. Though a seasoned television cinematographer, this is Tyler's first time directing a documentary feature. It's his chance to tell stories that can save lives. Many Cluster Headache sufferers are dying. They are looking for a solution, an outlet, a voice - and Tyler realized he has the ability to make a change and become that voice.
  5. CariJ

    2015 Clusterbuster Conference

    Spotlight on Our Conference Speakers: Dr. George Urban Co-Director, Diamond Headache Clinic "First visit is always stressful. I try to break down the barrier so the patient feels comfortable and reduces their stress level. I ask what their expectation is, and if it's a cure, I tell them right away, we don't do that. I tell them what they can have is a better life with reduced frequency and severity so they can get back to doing what they want.†Dr. Urban is a native of Presov, Czechoslovakia. He graduated from Safarik University Medical School in 1974, and from there, completed a residency and fellowship in Neurology at the Municipal Hospital, Kosice, Czechoslovakia. Dr. Urban came to the United States in 1985, first settling in San Francisco, and then moving to the Midwest to pursue a residency in Internal Medicine at Rosalind Franklin University of Medicine and Science in Chicago . He joined the staff of the Diamond Headache Clinic in 1990, and since has taken a strong interest in the treatment of headache with BOTOX® injections. He is currently on the staff of Saint Joseph Hospital and is a Clinical Instructor, Department of Medicine, at Rosalind Franklin University of Medicine and Science, and a Lecturer, Department of Medicine (Neurology), Loyola University Chicago/Stritch School of Medicine. He has lectured on various headache subjects throughout his career, and is actively conducting research at the clinic.
  6. CariJ

    2015 Clusterbuster Conference

    Spotlight on Our Conference Speakers: Bruce Sewick Bruce’s interest in mental health started with his exploration of altered states of consciousness in the 70’s while an undergraduate at the University of Illinois (Chicago). He received his Bachelor’s degree in Psychology in 1974, but due to a weak job market in the field, spent the next two decades in the transportation industry. His last significant job in this industry was working for General Electric, which funded most of his graduate degree in Clinical Psychology from Roosevelt University, from which he graduated in 1997. At this point, he changed careers to the mental health and academic fields. He is currently the Manager of Adult Mental Health at Leyden Family Service and Mental Health Center. He is also adjunct faculty for Online Learning at the City Colleges of Chicago, Wright College, and the College of DuPage -where he teaches a class on the therapeutic use of Psychedelics. He has been lecturing on Psychedelics since MAPS published his Master’s thesis “Psychedelic -assisted Psychotherapy for the Terminally Ill†in 1997.
  7. CariJ

    2015 Clusterbuster Conference

    Spotlight on Our Conference Speakers: Mitch Post Mitchell D. Post is from Pittsburgh, PA and is a chronic cluster headache patient since 2009. He is a citizen scientist and freelance researcher as well as a firefighter, avid climber, skier and mountain biker. He will be discussing 5-MeO-DALT.
  8. CariJ

    2015 Clusterbuster Conference

    Spotlight on our Conference Speakers: Mr. Bill Mingus Bill is a long time veteran of cluster headache. He has been active in the online community and was a member of OUCH USA for many years. Considered by many as an expert on the use of oxygen in the management of cluster headache, Bill will share his knowledge during our lunch session “Oxygen - Making It Work For You. A Hands On Demonstration and Discussion.†This will be an opportunity to learn more about oxygen use including tips and tricks to optimize its effectiveness.
  9. CariJ

    2015 Clusterbuster Conference

    Spotlight on our Conference Speakers: Dr. Larry Schor Ph.D. Dr. Schor is a Professor of Psychology at the University of West Georgia and a licensed psychotherapist. He is a Licensed Professional Counselor and Certified Professional Counselor Supervisor in Georgia. His research, teaching, and practice focus on the psychological effects and treatment of trauma. He is particularly interested in states of consciousness associated with trauma and pain; especially alterations in consciousness associated with cluster headaches. Dr. Schor will be presenting to the full conference as well as holding two closed group discussion sessions as he has done in the past.
  10. CariJ

    2015 Clusterbuster Conference

    Spotlight on our conference speakers: Dr. Emmanuelle Schindler Dr. Schindler is a Neurologist at Yale School of Medicine. She received a B.S. in Biological Psychology at the College of William & Mary in 2003, graduating Summa Cum Laude. She received her MD and PhD in Neuroscience from Drexel University College of Medicine. She has won several awards and honors including the American Academy of Neurology Award, Excellence in Neurology in May of 2012. She has numerous publications. Dr. Schindler will be giving us an update on the psilocybin study at Yale.
  11. CariJ

    2015 Clusterbuster Conference

    Spotlight on our conference speakers: Dr. Joanna Kempner Joanna Kempner is an associate professor of sociology at Rutgers University and an affiliate of Rutgers’ Institute of Health, Health Care Policy and Aging Research. Her first book, Not Tonight: Migraine and the Politics of Gender and Health (Chicago 2014), asks why doctors, policymakers and employers don’t take headache disorders like migraine and cluster headache very seriously despite the fact that they are so prevalent, disabling, and costly. As we know, cluster headache is not a well-understood disorder. Dr. Kempner will discuss the history of cluster headache medicine, with an emphasis on how myths and misperceptions about cluster headache patients have slowed medical progress. Her talk will also address how patient movements, like Clusterbusters can improve medical research.
  12. CariJ

    2015 Clusterbuster Conference

    Spotlight on our conference speakers: Check back often to see who will be speaking and the topic of their talks! Dan Ervin Dan is a 57 year old man who has experienced chronic cluster headaches since the onset of the disorder 12 years ago. He has tried most every medication available and every surgical procedure short of deep brain stimulation. Known as “Hollywood†among the cluster headache community, Dan volunteered to host a National Geographic film crew from London to document his use of mushrooms to successfully treat cluster headaches. This year he is our awesome MC.
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