Hi all. Been on this site for 4 wks now. Here is my story...I'll try to keep it brief.
27 years with CH's. Episodic. 47 years old. Like most, originally thought it was a tumour, or results from many concussions. Many Dr. visits and Neurologist later, was told I have Cluster Headaches, and was given Triptans. Been using these awful things for 15 yrs now...never again!!
A month ago, I was directed to this site by a friend, then started emailing John Fletcher with questions. He has been amazing....thanks John.
I immediately started the D3 regiment. Two wks later I was finally able to get a Vit D test done (am still waiting on my results...hopefully next week). I am only taking 20,000 IU of VitD per day, along with the other recommended co factors.
After a few days of this last cycle, I thought I noticed a difference in my frequency and severity...but it was short lived (a day with no headaches). I normally get 5-10 CH's per day, and 2-3 in my sleep. They range from a 6-10 in pain, and it's common for my wife to find me writhing on the floor of the bathroom, crying or rocking myself in pain on the couch.
During this time (last 4 wks), I've also researched and read other thing people are doing for relief, all the while taking my Vit D3 reg. I've looked into Psilosybin, 5 hr energy drinks, cold showers...and all have worked for me. I have yet to get O2 from my ridiculous family Dr...but am seeing him in 2 weeks for a prescription.
Also...I have started taking Melatonin at night about an hour before bed.
So here are my results.
Totally headache free the last 3 nights and 4 days...not even a shadow.
Been doing the Vit D3 every day, and will continue to. Will change my D3 amounts after I get my test results back.
Exactly 8 days ago today, I bought 6 bottles of 5 Hr Energy drinks and have taken 4 of them (one per attack) in the nights when I am awakened from an attack. The CH would last anywhere from 20 -35 mins...and be gone like a flick of a switch after shooting a bottle of this stuff. Way better than before where they would last up to an hr to two. I even experimented with ice cold showers before I tried the energy drink, and that seemed to work the 3 times I tried it. But it was just too much to jump into an ice cold shower and hyperventilate while I was suffering from theses damned headaches....but...they did work each time I tried them!!
MM's....took 3 doses over a 3 wk period. Small amts...and have had no side effects. Hard to really tell if they are working for me or not, but cannot say they are hindering or making things worse. Will continue to use if needed.
So, right now am pain free...for the least 4 days. Usually, in the past, when I go two days without a CH, that means the cycle is done. I hope the same is happening now. I cannot 100% say what has helped me get to where I am now, but would like to think the Vit D3 is helping, and maybe the MM's too. I hopefully will know more when I get my test results back.
It would also be great if I am simply just Melatonin deficient, and taking two of these pills a night solve my problem. I should also note that since I started taking Melatonin 3 nights ago, I have stopped getting attacks...coincidence...? Maybe...maybe not. Time will tell.
Just wanted to share my story, and what I've been doing. This site has been a wonderful find and I feel like part of the big CH family. I share in all your suffering and and hopefully in all your pain free futures.