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Kellylynne22 last won the day on September 17 2016

Kellylynne22 had the most liked content!

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  1. Just wanted to update on this thread, I was on Decadron for five days which ended on Monday. It is now Friday and I have not had a single cluster headache. It appears I am the exception to what most people here believe, which is that steroids can't break a cycle. Of course I know it could come back at any time, but I wanted to update to give hope to any other new members who come here for advice and are told what I was - which is that it would not work. Well, it did work. As far as vitamin D levels are concerned, I had mine tested and as I suspected, being outside all summer and taking a pre
  2. See, the thing is, I feel more comfortable trusting the advice on levels and what is deficient from my actual Doctor than the data you have from "a leading medical center". With actual sources I'd be more interested. What leading medical center? Where does this info come from? This website has a lot of very useful info but you guys often cite other users as supplying your info, which to me is just like any old person posting stuff they made up. I base my decisions on medical journals and actual data from my doctors. Not trying to be a jerk or anything, I do appreciate it. I just need real sour
  3. Thanks...what is Kudzu? I don't really feel comfortable taking red bull pregnant, but I do drink a can of Coke here and there for the regular migraines, I will try that with the CH and see if it makes a difference
  4. I had my D levels tested about 8 months ago. 10 and under is deficient and doctors generally look for 25 and up as a normal range. I was at 15 at the time, so I took supplements. The levels listed in your document are not safe for pregnancy, those levels are nearing toxicity. I'm sure they won't harm someone who isn't pregnant, but the potential is there - or they just have really expensive pee, because that's where all that extra goes. I really appreciate all the advice and I get the urge to turn to alternative medicines when nothing else works. That being said I will ask my dr to test my D l
  5. Thanks I may have my dr test my d3, but I have been taking d3 and the added d3 that's in my prenatal, not to mention I've been in the sun daily all summer. I would be completely shocked if my clusters had anything at all to do with a D deficiency.
  6. My dr and I are both aware of oxygen. It is not an option with my insurance. After scrolling through pages and pages of posts before writing this, I am aware that for "most" people none of these drugs can stop a cycle but I was hoping to find that for some people they can...I guess what I'm most confused about as I am new to these, is why even bother with meds at all if you have true cluster headaches, they are going to keep coming back every single night no matter what? Maybe coming from a long long history of traditional 3-5 day migraines where if you break the cycle with meds they will leav
  7. Hello, I just joined. I am 36 weeks pregnant and have had "classic" migraines of most of my life. About 11-12 days ago I got my first cluster, and it's been every single night since then. These things make regular migraines look like "kid headaches". The pain is unbelievable. Always wakes me up from sleep, always occurs between 10 p.m. and 6 a.m. They peak within 15 minutes and are not usually fully gone for 2-3 hours, with the most painful part lasting around 30 mins. Everything about it fits the exact description of CH. including the location along the left side of my head, primarily behind
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