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  1. Hi everyone, I suffer from episodic CH. Over the years I've had a total of two occipital nerve blocks administered by my neurologist, neither included steroids. I guess it was just lidocaine that was injected as my nuero said she doesn't like doing the nerve blocks with steroids. This probably explains why neither procedure provided me more than about 12-24 hour relief. From what I've read online if the nerve block includes the steroids it can offer several days or even weeks of relief. In your experience, have you had an occipital nerve block with steroids? Did it help you? Who administered it, your neurologist or a pain management doctor? Any intel is appreciated, thanks!
  2. Hello, I just joined. I am 36 weeks pregnant and have had "classic" migraines of most of my life. About 11-12 days ago I got my first cluster, and it's been every single night since then. These things make regular migraines look like "kid headaches". The pain is unbelievable. Always wakes me up from sleep, always occurs between 10 p.m. and 6 a.m. They peak within 15 minutes and are not usually fully gone for 2-3 hours, with the most painful part lasting around 30 mins. Everything about it fits the exact description of CH. including the location along the left side of my head, primarily behind the eye, around the jaw, temple etc. I have found one person on a pregnancy forum who had this develop around the same time in pregnancy as I have, and it went away when her baby was born. I hope to god that happens to me, but I'm very scared. Because I'm nearly full term, my Dr felt it was safe for me to try 4mg imitrex injections, of which i'm going to try for the first time tonight. (I've taken imitrex pills in the past for my "regular" migraines while not pregnant, and they always worked, but tonight will be my first time with the injections.) She also prescribed a 5 day course of steroids - dexamethasone - which does have some concerns in 1st trimester, but for this far along she feels it's completely safe. I'm of course very nervous, but going on 12 days in a row of a cluster headache every single night - well the pain, lack of sleep, and stress can't be good for the baby either. I have to give this a try. My question is, I know that generally both of these drugs have a history of being more of a "crutch" than a cure - but do either of them ever break the cycle? I really can't imagine going four more weeks like this. I am afraid with imitrex it will stop the cluster tonight, but since mine are daily - will I just get it again tomorrow? I'm not going to feel comfortable taking imitrex every single day, that's for sure. Same with the steroids - I know for most they don't, but does anyone ever report of steroids breaking a cycle?? I guess i'm just looking for some hope at this point. This is all coming from my OB - It's a very long wait to see a neurologist, and I need something to help me manage the pain and get my baby here safely sometime in the next four weeks. I will be seeing a neuro and getting an MRI whenever this super long wait to do so is up.
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