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Everything posted by timpromo

  1. Hi Mel, I've had Cluster headaches since 1993. 25 years now. I've gone through the gamut of treatment as well as doctors. From doctors who wouldn't prescribe anything to doctors who were willing to work with me. I'm currently under the care of a neuro. who has me on the following preventative regamin: 900mg of Lithium, 240mg of Verapamil, 1000mg of Depakote, 300mg of Gabapentin at night (to help keep me in REM sleep). I have a prescription for injectible imitrex to use when I get a headache. I split these to make them last twice as long. I also buy all of the imitrex that the presc
  2. I'm an episodic clusterhead. I was dx in 1993. I've been dealing with these sons of bitches for awhile now. I was in remission for almost two years then got blindsided on 5/3/18 with another cycle. 1-2 per day. No rhyme or reason in regard to time of day. Almost always its during a period of relaxation. I'm taking 2000 vitamin D3, 900 mg Lithium, 240 mg Verapamil, 1000 mg Depakote and I abort with subcu imitrex. I can't seem to shake this cycle. I will get a couple of days headache free but I just can't shake them this time. Batch, do you maintain the vitamin regamin year round or ju
  3. My apologies for not responding sooner. I've printed out the O2 study and plan on reading it as well as taking it to my neuro. appt. on Tuesday. My neuro. is pretty headstrong and I've trying to find a new one without too much success. I think I'm at the end of this cycle. I've been through 2 predisone treatments. Each one stopped the cycle while I was on the dose, but the cycle resumed shortly after each regimen was completed. I'm having inconsistent night headaches...every other night or so...only one...but enough to interrupt my sleep schedule and exhaust me. I've experimented with m
  4. That's good information to have Denny. I've had these for a long time and haven't had a doc yet tell me that. The standard answer I always got was, "There's no evidence to support that" I'll discuss with the neuro on Tuesday and if I come out empty handed I'll head to the GP. They never seem to have a problem giving me what I need.
  5. Good afternoon everyone. My name is Tim and I live in Richmond, Virginia. I've had/been diagnosed with CH for 23 years. I'm currently in a brutal cycle. I've been "in cycle" for almost six weeks. I started taking Lithium several years ago and my cycles have been brief (1-2 cycles a year - seemed seasonal) and, for the most part, tolerable until now. I was actually headache free for the past two years. Currently, I've been getting three headaches or so a day. All of them are usually at night - between 10:00 PM and 4:00 AM. I abort using imitrex and I divide the syringes to make the inje
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