Snowflake

Is there anyone in here that has this condition? I can't help it but feel like sometimes, well more so recently that I am not in the drivers seat anymore. I am behaving strangely. I have moments like this where I can feel myself. It feels like I'm hiding and typing this. But also that I'm being watched. People and everyone in my circle are noticing strange differences in my personality alot recently. I'm concerned. Feels like something else is saying and doing things I don't mean and the worst part is that I cannot stop this from happening. I'm scared.

Good day, I hope you all are doing great. One of my many hobbies are surf fishing. However, and considering my ceramic hips, I haven't been fishing in years. I would love to go back to it, however I was at the beach up the south coast a few weeks ago. Spent about a full day there, and I noticed that a cycle began a day afterwards. So not sure if that does have something to do with being at the beach. Was a full moon as well towards that evening. I love fishing alot. I do know the lunar activity does obviously have an impact on the ocean and tides. Basically anywhere there is water.... Including I side our heads. Anyone think that this would spark a season or not or interfere with my D3 Regimen? I remember reading years ago about the moon, ocean and how it could start a cycle but nothing was really concrete. Just want to make sure and don't want to deprive myself of my hobby. I find it relaxing otherwise and atleast I can get out the house for change despite all the horrible challenges I have endured over the years. Thanks for all the advice in advance Snowflake

Hi, This is great news. I am so happy for you. I also went through the phase of hopelessness quite to the extreme. However, I found the answers within this wonderful group of souls and I so far have had 6 wonderful pain free years away from this curse. The only adjustment I made to my lifestyle aside from starting the D3 Regimen 6 years ago, was just stopping alcohol completely. I mean I was a social drinker but just stopped it. Now I can't even stand the thought of it. I still smoke since 1995. I haven't made any changes to my diet much, beside eating alot of apples and drinking alot of water. O2 has my back always just incase. So that is a must have readily available always. So goodluck going forward and keep to what works for you. Pain free wishes

Hi The injections have been discontinued in South Africa for some time now. I'm in Durban. However, what I found personally is that those injections, whilst it does abort the attack, it brings on a series of follow up attacks. I would suggest that you read through the vitamin D3 Regimen. Since I had been introduced to this magical treatment by fellow sufferers, it has really working so well for me. It does take some time to start working, however, once you are a month or so in it, it works wonders at giving you years of remission. Well that's what I found. You just have to be patient with beginning and once you in the game, you will be rewarded greatly. It is easy to lose hope whilst beginning. I did. But I gave it my all and I am pain free going on 6 years now. Whilst doing this regimen you will still get attacks at first, however, kill those attacks with O2 and maybe some OTC pain meds for the after pain on that side. Look for the D3 Regimen on this site. You won't go wrong. During these past 6 years, yes "he" did appear once, however I was guided to increase the D3 dosage for a few weeks and it phased off. Always keep O2 on hand. Always. Make sure to check your D3 levels regularly. When I started, mine was sitting at 18. Explained my brutal attacks and frequent cycles. I managed to bring it up over 80 with loading doses of D3 along with the rest of the vitamins within a matter of 6 weeks. I am so glad this is working so well for me. Maybe consider or read up on it. Well wishes. Snowflake

Welcome Eric. You are in the right place. Wishing you a well informed read/research and I hope you find a path of management that suits you well to keep the Beast in its cage. Goodluck

Hi Friends. I hope you all are managing and coping well. Just a quick one, I wanted to add Glutathione, with the D3 Regimen to help/aid with the repair of the muscle surrounding both my hip replacements since I'm due for my second set of hip replacement surgery cos it's been over 15 years now. I'm 45 at the moment, so if I need to have them done again, now is the right time. Dont want to reach my 70s and then it will be too risky. However, if I can use alternatives like Glutathione to repair the muscles mainly cos my current ceramic joints are still in tact and functioning properly. Well... My left one is squeaking if I squat ( was thinking of using WD40.... Lol kidding) , but he ortho took x-rays and Said that it still looks in good shape. I do experience pain from time to time and I walk with a cane to assist me. Is this ok to Take glutathione or will it interfere with the Ch and the regimen? Thanks and well wishes always. Snowflake

Thanks alot friend. Means alot to me. Seriously does. Wishing you a lovely day.

Hi there Chris. Thank you so much for taking the time to inspire me in ways to handle my situation. I truly appreciate it very much. I assume this is a safe place to spill my guts without being judged? Here we go: Just like you, my battle started when I was 16. But let's rewind a tad. Between the ages of 10 till I was 14, I had been sexually and violently abused by 3 people. Continously during this patch off my life, holidays, birthdays or any special occasions were taken away from me cos this when it was at its worse. These people are not my immediate family. Anyways, I hid this from everyone up till today as I'm sitting at 45 years old. When I was 19 I couldn't study cos we couldn't afford it. My dad was ill and my mom worked 2 jobs. So I went straight into the job life so to speak, making whatever money I could so we could put food on the table. Age 22 I managed to save up enough to study and achieve a diploma. Things started looking good for change. 2001. New years eve, I was on my way to work. Didn't have ea car as yet so I took a taxi. The taxi back wheel got loose at 140kmph and the entire vehicle rolled over about 3 or 4 times before landing on its roof. I managed to kick out the back glass and climbed out. Helped who ever I could. Cellphones where flung out of the taxi however I managed to find mine to call for help. But just felt so dizzy that I fell onto the road. I could hear something screaching only to find a truck tyre inches from my head. The drive jumped out and rush to me. My shirt was soaked with blood etc. So he just ripped it open to check for injuries. I still can believe that I never had a scratch. It was somebody else's blood. 2011. My 1st hip replacement. 2013. My second hip replacement while my wife was in the same hospital sorting out our second miscarriage. And I know what going through a miscarriage is being a male in a marriage. I have seen also what it does to the female. It's torturous. There aren't words actually and I tried to support from I was. We currently do not have kids and we don't want any. We just have a dog which we latch on to. And I can see that I (as much as I love my dog) am second to him. Which kinda sucks in a way. Moving on, I had been medically boarded from work due to the headaches and hip replacements even though I loved my job. They put it down to me in a very sly way using the fact that they refused to let me carry my O2 to work. I fought them since they 1st brought it up in 2014. But they got me out on 31.03.2021. So yeah my salary took a plunge and I'm left at home staring at the walls. I turned my hobby into a small business which is electronic repairs, however I stopped for a while now since my brother passed last year. Still dealing with my loss. I always wished it was me and still do. To be honest, I'm not sure if others feel this way, but I am not afraid of dying. Actually alot of people are not afraid either. I guess they fear of how they will die. I so welcome it. In fact I had 2 failed attempts at suicide. Yes I'm seeing a psychologist and psychiatrist which I also put on hold since last year. ... And now the CH season starts. I am sorry for the long read and if I said or mentioned anything that is not allowed on here. I am glad I did find this group because I did learn alot, especially the D3 Regamin and O2 treatment. Even though the damaged to my self has already been done. I may require bilateral knee replacements soon as well as the 15 year intervention regarding my hips. I am sure others have been through worse in their own way and path of life and this is not to undermind what you all are going through as well. Just know that I appreciate you all for the advice and direction in managing this condition atleast, even though I have no control over my past. I guess all that's left to say is Thank you all from the bottom of my heart and pain free wishes always.

@Dallas Denny Hi Dallas, Thanks alot buddy. Will check it out.

Wouldn't it be nice if there was a simple book of what this condition does to a person for the sake of understanding to everyone else. I know you probably have the beach boys playing in your head right now and I'm not talking about the pain of our condition. 90% of people will never go into this site to understand cos let's face it, they don't care enough to do so. I'm referring to the state of mind in all it's "splender". Anyone else has no filter during CH seasons? I feel like Eminem on steroids and I'm pissing off everyone around me. Obviously I don't care either right now however, people are noticing change in my responses and actions. So I shut up most of the time or try to avoid contact with anyone. Even my spouse. She does know the "drill" however the questions. The simplist of questions can start a fire in my eyes and what comes out the mouth, are stuff that neither of us expects. As for being out on the roads..!! It's like I have a license to be an ass. My D3 update: Sitting at 259. Hits max 3 per day @ 5 to 7 mins aborted with O2. No nocturnal attacks.

Thank you. Yeah I have the tanks, not the concentrator. However I set it at 4lpm depending on where about I catch the beast arriving. I did research on the concentrator and found that is really not for our condition. Still waiting for my blood work results. I got through yesterday with just 1 minor attack. Lasted 5 mins. Lucky me. Does any one know if oxygen helps for panic attacks? I get them every Thursday morning cos my bro passed at midnight on a Wednesday and this keeps playing in my mind. Rushing to the hospital only to find a nurse telling me that 'are you here to see Mr Reddy? You do know that he passed away?' I just grabbed onto the table near me and started hyperventilating. Then she just pointed out the room they moved him to where I found my family crying. My dad in a wheelchair crying. My brother cold as I kissed his cheek. This scenario plays in my head every day but worse on Thursdays. I really don't know how to handle this and I'm afraid to go for my psychology appointments cos that not going to bring him back. It's going to bring back reality 10 fold. Juggling between this and the season is really fk up. I come here to this group cos you guys are the only ones that would truly understand give me sound advice which I appreciate so much. Thank you all fot the support.

I wondered about that cos I only get them when I'm relaxing or watching TV. Even gaming. I have bad Rem. My wife says that my eyes shift side to side while closed extremely fast. Usually at the famous 2am mark. Went and did bloods yest. Waiting for results. I have a feeling my D3 dropped. At the moment I am loading and boosting with prednisone. Seems to be helping. I found that the hits are nothing that 4lpm O2 can't handle within 5 to 10mins for the ones that I do get. I'm just stuck between a rock and a hard place. Brothers death and ch season starting. Where do I focus. Even though it's so difficult to.

@BoscoPiko @CHfather @Amholla3Amholla3 @xBossThank you so much. Going to check bloods tomorrow. Need to check my D3 levels. Just had an attack now. Aborted with oxygen. I can feel it starting again. I added prednisone to my regimen just to get through the nights and to deal with my brothers death. It stopped the night attacks. Just 15mg a night. I don't know if calcium is bringing on more attacks. Cos when I take 50 000iu d3, omega 3, and vitamin A, it got me through 2 years. Till now. I feel when I take the entire regimen I have more attacks. Plus the magnesium I get cramps. The boron and zinc also doesn't seem to be helping. I know, whatever works right? My D3 levels in 2019 was 18. So after loading frantically I managed to get to 80 and the cycle stopped. I guess I have to check my levels tomorrow. Completely forgot about that cos the last two years was really hectic seeing to my brother etc. Thanks everyone for the condolences.

Thank you I appreciate it very much

Thanks so much buddy