I just want to say thank you all for all the information on your forum, I am be so appreciative of all your experiences.
My brief history (30yrs of CH) and story is as follow.
I live in the most isolated City in the World, Perth (Fremantle) Western Australia. So CH are fairly rare. I like most CH sufferers was diagnosed with Sinus issues, migrane, teeth/jaw problems etc etc. It was not until 7 yrs ago I ended up in emergency for the second time that year. After answering all the normal questions this young Irish Neurologist came and sat on the bed. I remember the day so clearly. He said "not feeling great? I can only imagine what you have been suffering all these years. " I was a bit confused by his comments. He then went on to say. " I have some good news for you the rest is not so great. You don't have Sinusitis or a brain tumour, you suffer from CH, unfortunately there are no cures, however there are few simple things you can do that will help" He then went onto explain about the various drugs available including Oxygen and Caffeine.
After trying all the different drugs I ended up 5 yrs ago relying solely on Oxygen and Caffeine and weekly visits to my Chiro. I had coped as well as we all do. My cycle is 3 months/yr with an average of 4-6 CH per day on RHS only mostly around temple area. I have had the same cycle for the last 5 yrs. From memory 1 year off over the past 10yrs. Prior to that I cant remember. The trigger for me is extreme heat over 40 degrees Celcius. It gets bloody hot in Perth.
This year has been one of my worst. Not so much the level of pain or the frequency (some days 10 CH) Just being so tired, not able to socialise or work as much as I would like. I know my cycle will come to an end shortly (in 3 weeks, I hope). I was just over it.
I have been a follower of Cluster Busters for years but never bother to join or get involved, just wanted to control it all by myself. I signed up a few weeks and started to read all the sad stories of CH sufferers.
It gave me a big kick, something I have not tried might help. Vitamin D3, I'll give that a go first then MM.
I started 7 days ago with Vitamin D. Following it to the letter. I'm on the big hit 2 week schedule.
Very pleased to say I have not had CH for 2 days. Coo Wee. Unbelievable.
Still waiting on blood results etc from my Dr so no information on my levels etc.
I just have a query. I have had a headache (more of a muscle ache) going across the top of my head starting 30 cm above ears. It gets more intense as the day goes on and disappears by early evening. Very Stuffy nose on both sides. Are these symptoms or similar normal with the D3 regimen.
I tried normal pain killers, not sure if they worked. Double shots of coffee seems to help. Oxygen does not work. I have had no shadows at all on my temple area for the past 2 days.
Any comments on the D3 regimen would be appreciated.