Hey everyone, I'm Charles, a 39 (nearly 40) year old CCH patient.
My headaches began coming on around age 24-25. I would wake up with what felt like the beginnings of a stuffy right nostril/sinus headache. Eventually, I would be rocked with pain behind my right eye as though I was being stabbed from the inside of my eye socket. Feelings of nausea and a complete inability to concentrate on anything would come on quickly. Sometimes I could (early on) get rid of the headache during initial stages with high doses of tylenol/ibuprophen and lots of coca-cola. Finally, I went to see my GP who misdiagnosed me with ocular migraines and prescribed 20mg Imitrex nasal spray. This treatment worked for a little while, but soon became about 50-50 effective/not effective.
About 2 years ago I found a neurologist who is a headache specialist near me (lucky). He put me on Verapamil as a preventative (initially 240mg/day) and prescribed me the STATpen Imitrex 6mL dose. My injections of Imitrex are about 98% effective in aborting my CH. Since I was not seeing any real reduction in the number of attacks he upped me to Verapamil 360mg/day, Depakote 500mg/2x day. For anxiety purposes I take 50 mg of Zoloft daily as well just for full disclosure.
Initially when I began the new cocktail (depakote, verapamil) I was super strict watching triggers and went down to 1 attack per month that needed imitrex. I would have maybe some shadows or Kip 1 attacks that seemed to respond to Aleve. However, my diet has been iffy at best and I'm at a terrible time of year for me (change in season) and I have been having a lot of attacks necessitating my rescue meds (Imitrex) to kill the pain.
I really want to get these under control. Getting back to 1 per month and hopefully down the road maybe a longer remission. Wishing all my fellow sufferers the best!!
Alcohol, Fluctuations in air pressure, Large temp fluctuations, aged cheeses, lack of sleep, periods of high stress, not drinking enough water.
I am trying the approach found at this link right now: https://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708
My Next Appointment:
My follow up is the last week in April.