Hi everyone, for the past two months I've been suffering with a sever headache, trips to the local GP and to the hospital to do CT scans show nothing irregular. At first I tried some over the counter medication but nothing worked, the GP tried giving me naproxen and amitriptyline after complaining about the pain and that I was being woken up during the night with it but they did nothing. The doctor finally suggested I might be suffering with Cluster headaches. When the pain comes, my temple on the right suddenly starts hurting, my eyelid droops, my nose runs and my eye waters. The pain itself is sharp but mainly stays around the temple area and occasionally drifts behind the eye. The doctor prescribed me Sumatriptan tablets and Pizotifen which seem to help somewhat. My only problem is, after the diagnosis I was obviously curious about cluster headaches. I started to learn more about it and I can't help but feel I've been misdiagnosed.
I've seen videos of people with cluster headaches, graphic descriptions of the pain and I can honestly say I am nowhere near. The pain I experience is debilitating and I often have to stop what I'm doing (Or do it very wrong) but I've never had to drop and scream, never once thought it was the worst possible feeling. I'm curious if Cluster headaches are a constant level of pain everytime they come about. Do they vary in how painful they are? Can you get a mild cycle? If so, is it possible I do have cluster headaches and the first experience of it is just a mild case and should I expect something much more sever later on?
If no, does anyone have any suggestions what else I could be suffering from?
I also asked my doctor to refer me to a neurologist only to be told there is a near two year waiting list and I've not the spare cash to book a private appointment.
Many thanks,
Lewis.