KenH

Hi Moxie, thanks for your reply and info about your busting experciences. What interests me a lot: how do you manage your cluster headaches while sailing?

Hi Spiny, thanks, you're right. Writing it down and talking about it with other clusterpeople helps a lot. "You can't control the situation but you can control your response..." hits the spot for me! At the moment I'm trying to tame the beast with microdoses of magic truffels (following 'the method') and I look forward to the outcome. I will soon ask for melatonin too, when I see my doc - the ones free of prescription are too soft: 0,3 mg - makes a lot of sense to me with my delayed pattern of sleep. Urs, interesting train of thoughts... Regarding Europe vs the US I'm not sure if th

Thanks! In fact, I have a prescription of them, but was indeed worrying that they would take too long to kick in - the zolmitriptans I normally take are melting tablets, but the prescripted sumitriptans (100mg I think) aren't. Maybe I could sniff them? (just joking!) 10 minutes is fine for me. Even the melting zolmitriptans take 30 minutes (faster with red bull of course). I think I pay like 1,5 - 2 euro's / pill (box of 24). Cheers!

Thank you both for your many advices! For the next episode I'll ask for oxygen. Don't know why three different neurologists haven't been prescribing it! It is possible to get in Belgium, that I know for sure. Concerning the triptan pills: that's a personal choice. The doctors already warned me that they don't kick in that fast - but injections and nasal sprays are very expensive in Belgium (despite our good health system). For my frequency, when I take the pills in time combined with caffeine, it is OK for nightly home situations - though I would prefer oxygen for those cases. And

Hello everybody. I’m 37 and I’ve been suffering from episodic cluster headaches since the age of 24 or so. (Sorry for my incorrect English from time to time - my mother tongue is Dutch.) In comparison to some other cluster heads (don’t mean to be harsh!) I’m pretty lucky having only one episode each year / year and a half. In these episodes I have 3-5 attacks a week, all taking off at night. I have all the symptoms: unilateral pain, neck pain, ear pain, eye pain, droopy eye, runny nose, can’t sit still… For years I wasn’t diagnosed properly (migraine, tension headache, sinus problems