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Everything posted by Jay176

  1. Jay176

    Vitamin D3 Levels

    Hi all! Lurker now poster here. Thank you to all of you that post and provide feedback - it has been a life saver to me. I started the Vitamin D3 regime 2 years ago and have managed to keep the beast tame and haven't had to go back to using prednisone. I recently had my Vitamin D3 blood test and haven't done it for awhile and my level is 91 ng/ml. (Last year I was at 27 ng/ml) .I still get a shadow a few times a week but now am unsure how to continue with the D3. I was taking the following medication daily a few months ago but then decided to lower my verapamil dosage: 1 Verahexal 240mg SR (Haven't taken for 2 months now) 10,000 Vitamin D3 (Pushed up to 15,000 when I tapered off the verahexal) 1 Mature multi 1 Omega 3 (EPA 825mg / DHA 275mg) 60mg Calcium If needed for shadow- 80g of verapamil My GP says I should stop the D3 for a while to lower my levels but I am scared to stop my D3. Should I just lower my daily dosage? Thanks in advance!
  2. Jay176

    Vitamin D3 Levels

    Thanks for the reply. I started K last month as it is difficult to find where I live. I tried to message Batch but it said that he can't receive messages.
  3. Jay176

    Dr Elliot Shevel

    I don't like speaking ill of someone but I went to see Dr Shevel in 2013 and left the consultation in tears. After suffering with clusters for many years, I stumbled across Dr Shevel on my local radio talking about his surgery and hope sprang up inside of me. I contacted his clinic and waited a few weeks till he came to my city. When I went to see him, he asked me what was wrong and I told him about my history of clusters. He seemed tired and uninterested and his answer was that I needed surgery and that it would cost round about R70 000 in total (That is our local currency) which medical aid does not even cover. No tests, no checking me out, nothing. I told him that I wasn't on medical aid and my family couldn't afford that type of money and he said a plan could be made. I will be emailed a quote. As I was in a cycle at the time, I asked him for a script for the medication that my neurologist normally gives me and after I had told him, he said he needed to read up on Verapamil and will email the script to me. I saw him on the Friday and only received the scripts on the Monday. For someone that 'knows' the pain that we go through, there wasn't much urgency to get the script to me and I suffered with many beasts that weekend. (Still have the emails btw) Anyways, I received the quote which I declined and promptly received a call from the clinic offering a smaller surgery at a cheaper cost (About half the price). Apparently they really wanted to help me. I declined this and went to see my old neurologist. When I told him about the surgery, he said that I'm not the only person that has been fooled. Dr Shevel - Your procedure may or may not work but I will never forget the consultation that I had with you. Yes, you may help thousands of people but you didn't help me and your lack of empathy was soul crushing. I am so grateful to people on sites like this that look out for one another and can identify with the pain that we all suffer with. Verapamil has helped me keep my clusters in control and this past week I went for my Vitamin D3 blood test for the first time and my doctor found that my level is very low. Today I started the D3 regimen and that's all thanks to sites like this.