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ClusterBusters

coolestnurse

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Everything posted by coolestnurse

  1. coolestnurse

    CH lasting longer than 3 hours- Are they Shadows?

    My last level was 40 without any supplementation. I started on 10,000 IU a day.
  2. I get different types of headaches, CH, migraine, tension and some other milder type I haven't figured out yet. Each is their own animal and for the most part do their own thing. However, sometimes I get the classic symptoms of a CH but it is a little milder and it lasts 3-6 hours.Does anyone have an idea what the heck that could be? Same burning, sharp pain in the eyeball and temporal area, but less other symptoms of restlessness, cognitive issues, less photophobia, pain at about a 4-6. I am still learning about shadows and maybe that is what it is? I thought my shadows were another phenomenon that I get, but maybe it is a different presentation. What I thought my shadows were was when I got more of the other symptoms of the CH but less pain. With those the pain is about a 1-3, but horrible photophobia, cognitive issues, restlessness, left sided runny nose and watery eye, etc. Thoughts? Does anyone else get this? Thank you!!!!!!!!!!!!
  3. coolestnurse

    CH lasting longer than 3 hours- Are they Shadows?

    Thank you for your support! At least I am not the one one!
  4. coolestnurse

    CH lasting longer than 3 hours- Are they Shadows?

    Thank you everyone!!! I have had CH for almost 20 years and yes a mixed bag of headaches! I am currently on Verapamil for my preventative. I also take Magnesium and recently added Vitamin D as well as fish oil! Currently I don't have an abortive that works, but I am going to ask my doc to try oxygen again. I tried it the other day at work, and it worked! I am hopeful that maybe something will work. I have tried over 20 meds and many more supplements in the past and this so far is the best I have been able to come up with. I have looked up other hemicranias before, but I will look at them again. Thank you everyone for your support!
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