Jump to content
ClusterBusters

S.E.

Members
 View Profile  See their activity

  • Content count

    4

  • Joined

  • Last visited

Community Reputation

1 Neutral

See reputation activity

About S.E.

  • Rank
    Newbie

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. S.E.

    Sorry about the last one

    S.E. replied to S.E.'s topic in General Board

    Thanks Dallas Denny I can’t believe this situation I’m in and will post anything I think could help someone as I seek help. I had a feeling the chance of someone having CCH&Lymes was slim. I spent months before being diagnosed with CCH and can’t take any chances with Lyme complications which have their own complex problems and my infectious disease docs weren’t farmiler with dosing? I have been on the Batch D 3 plan since last September and it hasn’t helped? I seam to fall into the 10% who don’t get relief with many of the things I read about. SE
  2.    Daniel58 reacted to a post in a topic: After 16 months of chronic CH every single date 4-6 attacks a day bad ones I heard from clusterbustets and busted it the 8 months later every 50 days I thought I had it figured out and then I was gaviyheadaches fever horrible sweats dozed thinking it w.y
  3. S.E.

    Sorry about the last one

    S.E. posted a topic in General Board

    After 16 months of chronic CH 4-6 times every day and going thru all the meds( including five days I'd DHE push infusions and 10 tanks of O2 w the cluster buster mask) nothing would help. I was scheduled for a five day infusion of karotine and saw the NG video by Dan and I busted w 3 grams five days apart and they stopped! I was on a 45-50 day schedule and waited for my 3 am wake up each time and it worked for 8 months. Then in a middle of my schedule I had terrible headaches and the dose didn't work? Then it turned to high fever and chills and soaking night sweats. I had a large rash appear on my flank and now have Lyme Disease. Even after the 30 day Doxycycline treatment Im still getting headaches for over three months with no help from busting. Has anyone out ther had a tick bite w Lymes Disease and also bad CCH? After seeing a Infectious Disease Specialist he says the only way to see if the Lyme has penetrated the blood brain barrier is to have a lumbar puncture ( spinal tap) and have scheduled it. Two of my six neurologists I've seen have brought it up but never followed thru with it for my clusters. Anyone else have one? I can't thank everyone out there enough and hope all are finding relief. SE
  4. S.E.
    After 16 months of chronic CH every single day, 4-6 attacks each day and busting approx every 45-50 days I though I had it figured out but No I got a horrible headache high fever 102/3 and drenching sweat. Found out I have Lyme disease. Now my schedule is messed up and I have headaches but not the attack kind day and night. Does anyone out there have both ch and Lyme. Now my headaches are having headaches!
  5. S.E. started following Vitamins
  6. S.E.

    Vitamins

    S.E. posted a topic in General Board

    What are the vitamin batch? And are they different for episodic or chronic?
×