Jump to content


  • Posts

  • Joined

  • Last visited

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

walshy155's Achievements


Newbie (1/14)



  1. A year later, I'm also back it's sucks, shadows for 2 days then bang last night one of the worst I've had and this morning, sumatriptan didn't do anything injected nor did my oxygen really don't know why they didn't work as they usually do, especially the O2. I hope you find relief
  2. I have really bad tinnitus which goes worse minutes before an attack, I think they are related if I'm honest, because my ears are fine and have been tested so it's neurological, I also have visual snow which is neurological and all have ties to the hypothalamus, hopefully one day we will understand the brain but I think that may be 100s of years
  3. Hi Batch, I have recently had a few blood tests and was found to be folate deficient, this may seem stupid but would my work keep vitamin d levels up as I do get a lot of exposure from UV radiation from welding? Also basically my doctor said she has to write a letter to a specialist to get approval to supply me oxygen which may or may not happen, I'm in the UK and have heard it's a pain to get it, I'm going to buy some welding oxygen and a rebreather in the meantime, I might get a discount being a welder after all, as for tonight I'm going to try tough it out, I don't know how people with it chronically cope, I take my hat off to them . Have a good night everybody
  4. Sadly I have a 2 week wait to see if I'm getting the oxygen:/
  5. Hello everybody, thanks for the helpful and kind replies it means a lot to me, today I went back to the doctors as last night I had two bad attacks which were out of the blue and completely different times to my normal attacks I think it was due to the ibrofen, I have been having shadows pretty much constantly so yesterday I took some ibrofen to see it'll help with them, it worked but I think it just held them off and caused a bad attack when the ibrofen wore off, it was about kip 8/9 luckily it lasted maybe 20 minutes and that is unusual for me, I thought well at least I probably won't have one in the morning and I could go to work nice and happy painfree, but no I had another which was terrible as we all know and lasted half an hour again strange as normal my attacks last 2 to 3 hours. So today I managed to see my doctor and after a good talk which was me basically describing the problems with sumatriptan she then asked me have you heard of oxygen therapy, I was immediately thinking yes I'm getting oxygen so she is writing a letter for the supply of oxygen. But will take about two weeks if I do actually get it. In the meantime until I hear about the oxygen I'm not sure what method to bust my shadows and attacks with, I have been using caffeine and energy drinks to kill the shadows but after a few hours they come back and after using the energy drink method twice the third one has no effect. Also I have stripped down my 6mg injections to the vial and needle so I can control how much of a dose I get if I decide I can't take it no more and use one, a question is would it be okay to use the same needle 3 times (2mg dose) and clean it with a lighter flame or water etc? Inbetween doses. I'm now happier that I'm most likely going to have oxygen soon, it was a relief when the doctor asked have you heard of oxygen therapy. If using the psychedelic method what could I do to abort attacks as I could not use the sumatriptan as I read it would ruin the whole point of the the psychedelic method and could possibly cause serotonin syndrome? Thanks everybody!
  6. Hello everybody I'm going to keep this short but I've been a sufferer for 3 years, and have gone through the annoying procedure with doctors saying "Get your eyes checked blah blah", misdiagnosed with migraines and what not and other doctors saying "not much we can do" with me crying in pain trying to talk to them and being asked to explain my symptoms during an attack, luckily one doctor knew what I was going through and I have been given sumatriptan injections, I try my best not to take them though... My first meeting with the beast was 3 years ago (maybe 4 but I only had 2 attacks that Autumn), my cycles are every Autumn and 3 years ago they lasted for a 2 weeks occurring once a day about 2 hours after I have fallen asleep and they were agonising I've seen the kip scale and I'd say 9, I managed to ride them out which is tough as we all know (the pain was making me think of suicide, but I know after 2 hours it will go). 2 years ago the cycle was similar and lasted about 3 weeks but occurred about 5 in the morning, this year they started about 4 weeks ago and occur like clockwork at 6:45-7 every morning kip 8-9, used a sumatriptan injection and it was bliss, they work good... Unfortunately since using an injection I have noticed a massive increase in shadows, and what is strange I now get two a day which is almost exactly 12 hours apart so I get one when I'm due to wake up for work which exhausts me and I am pretty much forced to go into work late if I can even go after the battle I've endured in the morning, this makes me depressed as I like many other people need to provide and earn money, what makes me more depressed is my employer isn't exactly taking it seriously as it's almost unheard of, my work mates are calling me a hypochondriac and I feel like my life is falling apart. I will be asking the doctor for oxygen this week, also my employer wants me to get proof from my doctor that I am fit for work, or face possible disciplinary action. This is making me incredibly anxious and annoyed. I will be applying for Personal Idependence Payment to make up for my lost earnings. I have never applied for any sort of benefit in my life and have worked since I was 16 now I am almost 23. I enjoy my line of work and take pride in it (fabricator welder) and would be devastated to loose my job and I also have a baby on the way. My mind is so shot I feel I cannot even write my experience down in a very meaningful manner. Sadly I feel like this cycle isn't going to end, so is there anything else I can do to keep them at bay? I thought it was going to end when I didn't have an attack for two days but came back in the morning a few days ago like clockwork. I'd appreciate any advice on busting them, thanks for reading Brendan
  • Create New...