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Brain on fire

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Brain on fire last won the day on January 13

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About Brain on fire

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  1. Brain on fire

    Interesting sleep/CH research

    Do try to find a headache specialist! No point in wasting time.
  2. Brain on fire

    Interesting sleep/CH research

    Sleep specialists don't treat cluster headaches.
  3. Brain on fire

    Interesting sleep/CH research

    Polysomnography studies catch far more than just sleep apnea. How low did your o2 saturation get? When you read the study you have it will be there. It will also show how often your sleep was interupted and most importantly the quality of sleep you get. It will also how much slow wave sleep (SWS) & REM you get. MSLT (daytime study done right after the study you had done) includes measurements on how long it took you to get to sleep & how long after sleep you go into REM sleep. It is used to measure excessive daytime sleepiness (EDS). About 4-5 times during the day staff comes in, hooks you up & tells you to go to take a nap. Each 'nap on demand' lasts 20 minutes, they wake you. Is this neuro a sleep specialist? Is it a stand-alone office or connected to a hospital for the studies? Any sleep specialist who lacks their own sleep study facilities & staff operating them isn't worth seeing. If it were me, I'd fire that neuro and move along.
  4. Brain on fire

    Interesting sleep/CH research

    You had polysomnography studies. Did you have the multiple sleep latency tests? They are the all day tests done the morning/day after nighttime (polysomnography) studies.
  5. Brain on fire

    Hope it helps, It worked for me!

    Thank you Juan Pablo. Happy it works for you. Please keep us posted.
  6. Brain on fire

    Hope it helps, It worked for me!

    Thanks for sharing. Speaking only for my female self my triathlon training was extremely strenuous. I strictly adhered to specific dietary requirements during training. My cluster headaches did not change. Please share the sources etc for the research.
  7. Brain on fire

    Interesting sleep/CH research

    I have narcolepsy and an excellent very well qualified sleep specialist. He was/is involved in my care with every neurologist/neurosurgeon I have seen. I have good sleep hygiene, despite the fact that my hits always wake me. My sleep specialist said there is no known connection between sleep disorders and cluster headaches.
  8. Brain on fire

    Some of your questions answered here...

    They were in the © material. If I recall correctly © 2003.
  9. Brain on fire

    Some of your questions answered here...

    Interesting read. The misspellings were bothersome.
  10. Brain on fire


    Okey dokey. I use nasal irrigation, basically a neti pot. No big pharma involved. Just be sure to boild your water for 5 minutes or use bottled filtered water.
  11. Brain on fire

    Math and Chemistry can explain it.

    Interesting read. I did find the misspellings a bit unnerving.
  12. Brain on fire


    and the colloidal silver? Worries me also.
  13. Brain on fire

    How was your weekend?

    Opps! Not so much for folks who are vegetarian or vegan.
  14. Brain on fire

    How was your weekend?

    I vote steak and lobster for all supporters!
  15. Brain on fire

    Oxygen arrived

    I'm working with the oxygen to abort. The mask and bag provided were useless. Thanks @Batch for instructions for the red neck oxygen bag. It gives plenty of o2 with no resistance... My CH all start at K9 less than 5 minutes escalate to K-10. Two exceptions, both atypical, both during the day. Perhaps later a bit before bed as a preventative can be mastered.