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ClusterBusters

Brain on fire

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Brain on fire last won the day on April 5

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About Brain on fire

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  1. That is it. I'm outta here.
  2. Good work @igdc! Sounds 'scammy' (new word) to me. @Into Light I'd avoid it.
  3. Brain on fire

    Severe headache

    Based on the only 2 reccomendations of Gabapenten & Occipital Nerve Block from that neurologist I'd not see that one again.
  4. Brain on fire

    Coronavirus PSA

    Thanks for the kind offer, it was a challenge, not begging. Besides, we don't have Meals on Wheels. I used to container garden.
  5. Brain on fire

    Coronavirus PSA

    3 minute walk to the beach & orders oysters. Appetizer & as the main course. That is either over kill or someone flashing their spending capacity. If I was 3 minutes from the beach that'd put me near gathering my own for nothing.
  6. Brain on fire

    Coronavirus PSA

    @Batch your diet reccomendations are good. Here is my challenge for anyone to use them. Limit spending to .49 (forty-nine cents) a day SNAP benefits, living in a rural area food desert with no public transportation & no internet service. Garden would be nice but your wheelchair doesn't work on anything but paved surfaces. I look forward to reading how it is done.
  7. Brain on fire

    Severe headache

    Found the link, tons of good info on oxygen & lots of goodies that are helpful. https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/
  8. Brain on fire

    Severe headache

    There are two options: 1. Medical oxygen, by prescription. Don't be surprised, some docs don't know how to write the rx. Usually written Oxygen 15-20 lpm with nonrebreather mask for cluster headaches. Most get E sized tanks (a cart usuful when away), a large M size tabk for home, the mask (some use the cluster o2 mask) & the regulators you need. It is usually delivered. Insurance may not cover it, some pay out of pocket. 2. Welders oxygen, I'd guess 70% here use it, the tanks are filled from the same large supply tanks as Medical oxygen. No rx needed (you can't tell suppliers it will be used to inhale, we have a couple of routines you can use if asked), you'd need to get a regulator, mask etc. Some lease tanks, some buy tanks. You have to take these tanks for refills. Links for details will be shared shortly (sorry I'm not great with links). Oxygen has no side-effects & has saved many cluster head lives. Mine is one.
  9. Brain on fire

    Pregnant and new CH episode

    Yipee! Enjoy the pain free!
  10. Brain on fire

    Severe headache

    Graci, do you have Oxygen? It is the 1st line abortive for cluster headaches!
  11. Brain on fire

    Is your pain on the same side that you hold a phone?

    It is human nature to seek something to blame our CH on. If that something is 'touchable' (e.g. a cell phone) it seems to comfort a bit more.
  12. Brain on fire

    Pregnant and new CH episode

    She doesn't have the flu she's pregnant! Congrats on both!
  13. Brain on fire

    Coronavirus PSA

    Balanced nutrition, 7-9 hours of sleep/night & regular exercise boost the immune system without throwing pills in the mix. Whether they be pharma or your basic unregulated supplements. Common sense.
  14. Brain on fire

    Website Down - But Fix Is In Progress

    Well done!
  15. Brain on fire

    Minidoc about Horton's and oxygen coming up on CHAD 2020

    Thanks to the emergency personnel in Finland for help with oxygen! I'm not in Finland but know the value of assistance.
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