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ClusterBusters

Brain on fire

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Everything posted by Brain on fire

  1. Brain on fire

    Newly diagnosed CH

    Beautiful thread. Nce to see this kind of support on a consistent basis.
  2. Brain on fire

    Vitamine D3

    Glad basic non-busting info is updated & in the future I'll look before referring. Since I couldn't take even D3 alone & keep my D level up naturally I don't often reread the basic non-busting info.
  3. Brain on fire

    Vitamine D3

    Thanks for the correction @CHfather I need to remind myself it is being updated and not to refer folks to the basic non-busting info until that is updated.
  4. Brain on fire

    Vitamine D3

    Welcome @Finance while waiting for Batch to reply you can read about the regimen under the New User's blue banner. You'll need to scroll down.
  5. Brain on fire

    Does nasal spray work for you?

    Did we forget to tell you big pharma sales folks browse the forum looking for posts like yours? A contract hit has probably been issued for you in the States (joking of course).
  6. Brain on fire

    Does nasal spray work for you?

    Apologies for any confusion. I meant the 2 posts on the same day were both by you @Matt19
  7. Brain on fire

    Does nasal spray work for you?

    @CHfather one person two posts a few hours apart.
  8. Brain on fire

    Sumatriptan where has this been all my life

    Busting also helps with depression, anxiety & alcoholism. I hope you get that oxygen going & perfect your technique so you can get through now, through the detox periods, bust & get to pain free status.
  9. Brain on fire

    o2 noob help please

    I bust, therefore I am pain free . Thanks for asking!
  10. Brain on fire

    o2 noob help please

    @xBoss stop that! Pleeeeze?
  11. Brain on fire

    What if there WAS a CURE?

    Perhaps GoggleEye forgot the info so nicely handed to us re identity with the newer username/account Dragonkiller for this thread. The only other post by GoggleEye was the oxygen brought right to our attention in this thread.
  12. Brain on fire

    o2 noob help please

    Hey @xBoss I've been busy (slap-backs) but just wanted to say hang in there. You are a pro.
  13. Brain on fire

    Emgality allergic reaction

    So sorry to hear this @Luis. Were you at least able to get life altering oxygen? It is so fast & so easy.
  14. Brain on fire

    What if there WAS a CURE?

    GoogleEye/Dragonkiller I didn't need to thanks.
  15. Brain on fire

    Me having a kip 8 cluster. Sharing is caring :)

    I believe the last time I had Sumatriptan to abort was April or so, back when my 'perfect' schedule was rudely interupted. Might have been longer...
  16. Brain on fire

    Hi friends! Guess who's back? Yep, me and clusters.

    Hope it is just the weather rather than a full on cycle and the meds work regardless.
  17. Brain on fire

    Are there any D3 Testing kits?

    Hey @Dana129 Were you able to get your supplements and lab tests? Awful news about the fires in Australia. Hope you are in a safe area.
  18. Brain on fire

    Hi friends! Guess who's back? Yep, me and clusters.

    Oh nooooo!!! Hope you have a plan in place.
  19. Brain on fire

    For the milder of the headaches...

    Not by any means am I saying you are stupid, we all make mistakes. There is a pinned post in Research & Scientific News about it. I'd suggest reading the entire post as well as the links in it for a better picture. Pain free wishes!
  20. Brain on fire

    Diet and Clusters

    I had to reframe the way I looked at my chronic cluster headaces to exit despair mode. Even though the next Kip 10 came only 30 minutes after the 1st, 2nd etc. ended (I was Kip 10 to Kip 0 no ramp up, no ramp down). They each had an end & 30 minutes pain free between them. I was grateful for both.
  21. Brain on fire

    spread sheet

    Yipee! I got something right today! Seriously I've dropped, knocked over and/or spilled everything I've touched. I decided maybe the keyboard won't break.
  22. Brain on fire

    Nothing is working headaches getting worse

    @Andre people pop up every day or so with the cause, cure & often links. Some have been in remission a few days, some longer. These posts muddy the water for newcomers looking for accurate info. If you'd come on, shared your story without the words cure or cause, without links & without multiple posts we'd have thanked you for sharing what is working for you at the moment. I sincerely hope your remission lasts.
  23. Brain on fire

    spread sheet

    Variables could be a major jam. eg. Does Topamax work for you? I couldn't take topamax to begin with. Yes doesn't apply, no doesn't apply, sometimes doesn't apply. Doesn't the Registrate Your Journey App (here) do something similar? Or did it at one time? I've never used it.
  24. Brain on fire

    Nothing is working headaches getting worse

    Great way to get your posts reported!
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