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ClusterBusters

Brain on fire

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Everything posted by Brain on fire

  1. Brain on fire

    This helped me- hopefully will help others

    I do hope folks read the post & all replies via the search, it addresses this in-depth
  2. Brain on fire

    Simple Technique to Abort Headaches Right at Onset!

    Just a suggestion... I'll suggest this in a similar topic as well. Use the magnifying glass to search for histamine dump (it may sound irrelevant, it is worth the time). Please take your time to carefully review all of the posts that come up via that search. Warning!!! The post contains the word "CURE" (not my caps) & the word 'cure' doesn't apply to cluster headaches... yet. Therefore the use of the 'C' word can trigger suspicion (particularly in a 1st post) and outrage. Thanks.
  3. Brain on fire

    This helped me- hopefully will help others

    Just a suggestion... I'll suggest this in a similar topic as well. Use the magnifying glass to search for histamine dump (it may sound irrelevant, it is worth the time). Please take your time to carefully review all of the posts that come up via that search. Warning!!! The post contains the word "CURE" (not my caps) & the word 'cure' doesn't apply to cluster headaches... yet. Therefore the use of the 'C' word can trigger suspicion (particularly in a 1st post) and outrage. Thanks.
  4. Brain on fire

    This helped me- hopefully will help others

    Thanks, we like 1st hand reports. Great! Got any statistics for us? Research?
  5. Brain on fire

    Simple Technique to Abort Headaches Right at Onset!

    1st restricted thread I've ever seen. Can we ask where the armpit comes into play?
  6. Brain on fire

    This helped me- hopefully will help others

    Please source. Thanks.
  7. Thanks CHf, usually there is a reason results were not included in a published study. Not saying this study is one of them but if it stops working at all after 3 weeks & the side-effects get ugly... Put on your pharma executive shoes for a sec... Would you include it & still market the drug successfully?
  8. Brain on fire

    Newbie here from Iowa

    Hi Jeler, apologies for chiming in late. You came to the right place. Welcome.
  9. Brain on fire

    Simple Technique to Abort Headaches Right at Onset!

    Cures are permanent. This aborts for you. We are here to help & learn. We do not discriminate here. We have cluster headaches, they don't either.
  10. Brain on fire

    printed hand out

    They look for 2 items when you arrive at the ER: #1. Picture ID: #2. Insurance card/s. Keep your medical alert cards between the 2. Why not a bracelet or necklace? Speaking for myself... I have numerous drug allergies, for 10 years I wore a medical alert bracelet. Not once did anyone look at it other than to remove it & place it with my personal belongings. Nice one too, it had easily recognizable colored bands (e.g. purple for latex) allergies.
  11. Brain on fire

    This helped me- hopefully will help others

    That was my point. Always good to eat healthy. It would be nice (in some ways) if we could 'undo' & start over. However, to do so we'd need an isolated island for a few centuries. I'm all for if it works, doesn't hurt/endanger anyone else & doesn't kill you... Do it & please be sure to share it!
  12. Brain on fire

    Greater Occipital Nerve Block - and doctors are morons

    When you find another doc dominate the conversation, be brief & on point. Just a suggestion.
  13. Brain on fire

    My latest Vitamin D Results

    Interesting... What did your doc say?
  14. Brain on fire

    This helped me- hopefully will help others

    If it works for you, good for you. Thanks for sharing it may help someone else. Just my rambling thoughts. We have evolved, we are not Paleolithic beings. For centuries our bodies & those of our ancestors have been exposed to items in our diets, environments. Many are now a part of our genetics. Do we now de-evolve for centuries in isolation to un-do?
  15. Brain on fire

    Simple Technique to Abort Headaches Right at Onset!

    My nostril runs, my eye tears & sags. Surely the best headache docs know about this 'cure/treatment'. Why aren't they telling us?
  16. Brain on fire

    Simple Technique to Abort Headaches Right at Onset!

    My nostril runs, my eye tears & sags. Surely the best headache docs know about this 'cure/treatment'. Why aren't they telling us?
  17. Read too close to lunch time. Y'all make me wanna tie a chicken neck to my bumper, throw a cooler, oyster knife in the back of my car & head out for the best food money can't buy... crabs & raw oysters right off the bed!
  18. Brain on fire

    The 'driven' gene?

    Most of us here are driven to thrive despite cluster headaches, driven to find something that aborts, driven to find something that ends/prevents cycles or chronic cluster headaches. I pause to wonder... Is there a 'driven' gene?
  19. Brain on fire

    The 'driven' gene?

    Were you driven in other aspects pre-cluster headaches? I was labeled driven, pure passion to me. I was... 'driven' to perform, as a dancer, athelete, educationally, in my career & every aspect of my life.
  20. Brain on fire

    National Headache foundation article from last year

    Bless the one's who stand behind us when we need it & with us when we do.
  21. Brain on fire

    Teva Scraps Chronic Cluster Headache Study

    Our input is will make a difference in the lives of everyone with cluster headaches.
  22. Brain on fire

    Gingavitas update

    Congrats! You may now breathe.
  23. Brain on fire

    Newb here

    There are trigger foods. They, like Cluster Headaches vary by the individual. Some are known by many in the community as clear cut triggers... Until you come across that one or two or... who are not triggered by them.
  24. Brain on fire

    National Headache foundation article from last year

    Find something that works only to have another med (for which there were alternatives you were not informed of) keep it from working for over a year! Without hesitation I give that a definitive... D#$% that sucks!
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