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ClusterBusters

Brain on fire

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Everything posted by Brain on fire

  1. Brain on fire

    Let's get together

    East coast. Not a conference (The conference will come to the East Coast) just a laid back, come as you are 'Meet me at Joe's' kinda thing. If you can stay 1 day, cool. If you can stay 2, cool. If you need to camp at a State Park, cool. If you want to go crabbing & boil those babies up at a campsite, maybe several can pitch in & book camp sites. I'll be off the forum for a bit, but looking forward to thoughts & ideas.
  2. Brain on fire

    Nausea with D3 Regimen & Cofactors

    Getting the error message. @CHfather can you try to contact @Batch for this member please?
  3. Brain on fire

    Attacks after Sex

    Of course there is old trick some guys used to not complete... Oh, just use the magnifying glass to search 'masturbation' guys...
  4. Brain on fire

    Attacks after Sex

    @spiny you have given a new definition to 'Afternoon delight' (for the women among us).
  5. Brain on fire

    Attacks after Sex

    I consider myself fortunate then. Never once triggered me. My attacks were (love 'were') nocturnal then.
  6. Brain on fire

    New here and super happy to be here

    Welcome aboard @Marcelo_11. Sorry you need us, glad you found us.
  7. Brain on fire

    Attacks after Sex

    A whole new meaning to 'Do you smoke after sex?' Is this strictly a guy thing?
  8. Brain on fire

    Nausea with D3 Regimen & Cofactors

    Way back... stations often split networks. Until folks got UHF (oooo ultra high frequency television) & in 1971 the FCC stepped in to disallow it. I'm not sure when they changed their minds & allowed the split broadcasting to return to local broadcast network television.
  9. Brain on fire

    Nausea with D3 Regimen & Cofactors

    @Ilya K have you sent a message to Batch?
  10. Brain on fire

    New - Looking for Support

    I honestly can't recall a story here of a neuro that bad & that lazy. Pick up your pen & write the script like so DOCTOR!
  11. Brain on fire

    New - Looking for Support

    @jon019 nail on the head with a sense of humour. Good one!
  12. Brain on fire

    New - Looking for Support

    Your neuro said get your oxygen from Amazon. Perhaps he got his license from Amazon. Need I say more? Edit: He/she got his/her license on Amazon. Perhaps the diploma too.
  13. Brain on fire

    Life Update

    @Dana129 I just love seeing posts like that. I'm sure we all do.
  14. Brain on fire

    Emgality for episodic

    @swiftlaw it is all over the forum & goes back a good ways.
  15. Brain on fire

    Let's get together

    Not to mention the number of advocates gained.
  16. Brain on fire

    Let's get together

    Events like this are peer support at it's BEST. Are there stats on where folks with CH are located across the US? Member's are not required to give their location perhaps an informal poll (e.g. East, West, North, South please specify if 'mid') would all help folks plan meaningful events like this.
  17. Brain on fire

    Life Update

    I know how you feel. I owe my life to the forum too, that is why I stay on. It is us vs the cluster headaches. How are you doing?
  18. Brain on fire

    New - Looking for Support

    I was living between the headaches, because mine were chronic. 'Were' that'll always make me smile.
  19. Brain on fire

    Freud

    Big shout out for a fast and speedy full recovery to our beloved Freud. We miss you! Get well soon! xoxoxoxoxo
  20. Brain on fire

    Quick update

    We all miss you. Come back soon Freud!
  21. Brain on fire

    Freud

    Come back soon Freud, we all miss you!
  22. Thanks! "Cluster headache is an emergency." I like that, oxygen for all y'all!
  23. Brain on fire

    New - Looking for Support

    Apologies if I seemed harsh. I just get really pissed when I see no oxygen, a boatload of meds with each of their own added risks & little to no relief. A decent doc doesn't sit & watch ya suffer. No apology necessarily @jon019 your post re caffeine just popped up, good catch.
  24. Brain on fire

    New - Looking for Support

    Oxygen is much much faster than a Sumatriptan pill & will change your life! If my doc was throwing all those meds against the wall to see which 'stuck' to control them... FIRED! If all of those combined aren't working for you, why do you take them?
  25. Brain on fire

    New - Looking for Support

    Welcome to the forum Blair, sorry you need us & glad you found us. You'll get a ton of support & suggestions here. Hang in there. A few nice things about cluster headaches... they don't kill us, they teach us the value of pain free time & we gain a greater level of understanding & compassion for people who live with pain.
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