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ClusterBusters

Brain on fire

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Everything posted by Brain on fire

  1. Brain on fire

    Coronavirus PSA

    @Batch your diet reccomendations are good. Here is my challenge for anyone to use them. Limit spending to .49 (forty-nine cents) a day SNAP benefits, living in a rural area food desert with no public transportation & no internet service. Garden would be nice but your wheelchair doesn't work on anything but paved surfaces. I look forward to reading how it is done.
  2. Brain on fire

    Severe headache

    Found the link, tons of good info on oxygen & lots of goodies that are helpful. https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/
  3. Brain on fire

    Severe headache

    There are two options: 1. Medical oxygen, by prescription. Don't be surprised, some docs don't know how to write the rx. Usually written Oxygen 15-20 lpm with nonrebreather mask for cluster headaches. Most get E sized tanks (a cart usuful when away), a large M size tabk for home, the mask (some use the cluster o2 mask) & the regulators you need. It is usually delivered. Insurance may not cover it, some pay out of pocket. 2. Welders oxygen, I'd guess 70% here use it, the tanks are filled from the same large supply tanks as Medical oxygen. No rx needed (you can't tell suppliers it will be used to inhale, we have a couple of routines you can use if asked), you'd need to get a regulator, mask etc. Some lease tanks, some buy tanks. You have to take these tanks for refills. Links for details will be shared shortly (sorry I'm not great with links). Oxygen has no side-effects & has saved many cluster head lives. Mine is one.
  4. Brain on fire

    Pregnant and new CH episode

    Yipee! Enjoy the pain free!
  5. Brain on fire

    Severe headache

    Graci, do you have Oxygen? It is the 1st line abortive for cluster headaches!
  6. Brain on fire

    Is your pain on the same side that you hold a phone?

    It is human nature to seek something to blame our CH on. If that something is 'touchable' (e.g. a cell phone) it seems to comfort a bit more.
  7. Brain on fire

    Pregnant and new CH episode

    She doesn't have the flu she's pregnant! Congrats on both!
  8. Brain on fire

    Coronavirus PSA

    Balanced nutrition, 7-9 hours of sleep/night & regular exercise boost the immune system without throwing pills in the mix. Whether they be pharma or your basic unregulated supplements. Common sense.
  9. Brain on fire

    Website Down - But Fix Is In Progress

    Well done!
  10. Brain on fire

    Minidoc about Horton's and oxygen coming up on CHAD 2020

    Thanks to the emergency personnel in Finland for help with oxygen! I'm not in Finland but know the value of assistance.
  11. Brain on fire

    Is your pain on the same side that you hold a phone?

    I can't connect cell usage to my CCH but I saw a beer weeks ago & still have nightmares of being triggered.
  12. Brain on fire

    Coronavirus PSA

    I used to come just for a break from the 'news', can't catch a break here either. Signed, screwed pooch
  13. Brain on fire

    Coronavirus PSA

    Has worn my nerves thin too (still no bread). I'm done.
  14. Brain on fire

    Coronavirus PSA

    ?What? To heck with flattening the curve, protect the 401-Ks & thin the population?!?!?! Keep in mind with the shortages the very people who can save our lives (not a good time for heart attacks etc) will be the largest part of the reduced population. Less PPE, fewer to provide healthcare, less population but by George the financial markets will look good. World gone mad indeed.
  15. Brain on fire

    Minidoc about Horton's and oxygen coming up on CHAD 2020

    Wouldn't hurt to have it in the U.S. I never thought of calling an ambulance just to use their oxygen or get it noted in my records. I can see how it could make it easier to get oxygen.
  16. Brain on fire

    Coronavirus PSA

    Yipee! Glad you had a better day! Hope other's are doing the same.
  17. Brain on fire

    Coronavirus PSA

    I understand. Met an elderly couple at the end of yet another empty bread aisle. He looked shocked, "No bread, no meat..." she looked at him "What are we going to do?" apparent it was their 1st time out. Oddly there have been no local TV reports to inform folks of food shortages here. Enjoy that beer!! Rant if you need to folks.
  18. Brain on fire

    Minidoc about Horton's and oxygen coming up on CHAD 2020

    Thank you! Keep up the great work our friends.
  19. Brain on fire

    Coronavirus PSA

    Rod H we love you for it. Nothing could have prepared us but being prepared for something similar. Part of the problem here seems to be the announcement Sunday the public schools were closed. One County over 97% get school lunches, not everyone has access to the internet, nor do they all have computers. Those will suffer the most, not only educationally. If anyone communicates with Major Tom or the crew in Houston please be sure to ask where we can get protein pills. Might as well keep a sense of humour.
  20. Brain on fire

    Coronavirus PSA

    Agree! Wal-Mart isn't reserving the 1st hour for elderly/disabled. I'm no match for a mom with 3 kids instructed on where to go, what to get & where to wait for mom with the buggy to fill. Try again tomorrow, my last MRE for dinner tonight.
  21. Brain on fire

    Coronavirus PSA

    Our grocery stores open only for elderly & disabled for the 1st hour. Hopefully folks will regain or gain some sense of community & neighbor will help neighbor again.
  22. Sorry, eeww might want to get that looked at.
  23. Brain on fire

    Coronavirus PSA

    I'd like to stay home, Wal-Mart 7a, wouldn't have gone inside if I had food, witnessed the bread aisle & fled before seeing bloodshed. So tomorrow high risk me goes out for the 3rd time. Keep in mind I buy 1 month of food in 1 day every month.
  24. Brain on fire

    Coronavirus PSA

    I buy groceries for the month (fixed income). Wal-Mart had no bread, no meats, no canned meats, no cheese, no milk, no eggs, no frozen dinners, no milk, no toilet paper & no paper towels. I called when home. Store is normally open 24/7. Now closes at 9 to restock. I was told to be there when they open at 7a & hopefully they'll have something I can afford. A BIG shout out to those who have the resources to buy ALL of the groceries & leave NONE for the most vulnerable population. I live in a food desert, compounded by panic & greed. I have transportation, those who do not made long trips & came home empty handed too.
  25. Brain on fire

    Longest possible period of maximum suffering?

    A 10 for me "Why doesn't it just kill me?" When begging is pointless.
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