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ClusterBusters

Brain on fire

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Everything posted by Brain on fire

  1. Brain on fire

    CGRP info with caveats

    This is about migraines, interesting reading though. https://www.ajmc.com/newsroom/icer-releases-final-evidence-report-on-efficacy-cost-effectiveness-of-cgrp-inhibitors-for-migraine
  2. Hi jh, you can get more info by searching Emgality here.
  3. Brain on fire

    Emgality Shot for Episodic Clusters

    Search Emgality here for more info.
  4. Brain on fire

    Emgality Shot for Episodic Clusters

    Hope Batch will chime in. These meds can't pass through the blood brain barrier. If it works for you more power to ya & by all means let us know!
  5. Brain on fire

    Australians beware

    17K elderly & disabled in Georgia lose Medicaid due to a computer glitch. Every night following the evening news a debate was required... I was just a kid.
  6. Brain on fire

    Australians beware

    and the pharmaceutical industry breaks the banks. Is it just me who sees something terribly wrong in the 'big picture'?
  7. Brain on fire

    Australians beware

    People who can't work are forced to chose between healthcare & food, the nanny keeps the job.
  8. 870 CGA fits E tanks, that is an 870 CGA.
  9. Brain on fire

    Australians beware

    Alabama too, neither could I...
  10. Brain on fire

    Australians beware

    Heard this, it isn't verbatim. Politicians should stop practicing medicine without a license. They have no right to choose what we do with our bodies.
  11. Brain on fire

    Happy birthday Dallas Denny

    Wooo whoo Dallas! Stick around...
  12. Brain on fire

    Chronic Cluster Patient Pain Free for 11 days

    Milelli, great point about 'slow carbs'!
  13. Brain on fire

    Chronic Cluster Patient Pain Free for 11 days

    Consider the level of physical activity. In my former triathlon life I ate healthy. I have had rhabdomyolysis, not related to over exertion. The last thing anyone would want is to have their muscles break down to the point you require dialysis to save your kidneys. Just sayin... Not good, not bad... IMHO whether it be fashion or diet a fad is just that, a fad. To clarify I have not labeled what the OP is actually eating as a fad. I hope this thread will be updated.
  14. Brain on fire

    2019 Patient Conference

    I thought scholarships were opening in April & being awarded in May...
  15. Brain on fire

    Interesting info on legalization

    Doing my happy dance!
  16. Brain on fire

    Chronic Cluster Patient Pain Free for 11 days

    https://www.youtube.com/watch?v=bGY6hLrQOLA This is the same link in the original post here & the same link for keto diet posted on the general board under the topic "Cure". If you search keto or ketogenic diet tons of info comes up. Hope this helps!
  17. Brain on fire

    Chronic Cluster Patient Pain Free for 11 days

    Well bust my britches devonrex, I thought you had a Devon Rex... On topic... Eating healthy is a lifestyle, not a diet & we won't risk our health. That Hurts My Head, I 2nd your group hug & raise you one (edited to correct myself it is a group hug) I'll raise you 200. Absolutely no accusations here. Accepting suggestions on which topic in which board to reply to... The topic titles are so similar I get confused.
  18. Brain on fire

    Make this site as accessible as possible. :)

    I second that!
  19. Brain on fire

    Make this site as accessible as possible. :)

    Perhaps it would help to lighten the load of some topics that have been pinned. For example, a topic that has 2,3,4 or so pages about Viagra etc. is important information but the comments can sometimes obscure the point of a post. Just a thought...
  20. Brain on fire

    CH vs Migraine headache --from someone who has both.

    Thanks Batch, I'm not currently able to download. I didn't see mention of TACs, Hemicrania etc. The post was a bit much for me to absorb. Perhaps because I am having chronic cluster headaches more often...
  21. Brain on fire

    If you are new, here are some tips

    If you aren't a member you can use the magnifier top right to search for answers in the General & Open Forums (no login is required). Members can do the same for answers in all forums. Items with a 'pin' in the top left contain important information. Please read them, there are many items there to assist you. Thanks!
  22. Brain on fire

    If you are new, here are some tips

    Doing a Google search for diagnosis could cost a life! Tumors etc can cause headaches. Please have scans done. Proper diagnosis is crucial to get appropriate treatment options. No head pain or headache should ever be taken lightly.
  23. Brain on fire

    CH vs Migraine headache --from someone who has both.

    Doing a Google search for diagnosis could cost a life! Tumors etc can cause headaches. Please have scans done. Proper diagnosis is crucial to get appropriate treatment options. No head pain or headache should ever be taken lightly.
  24. Brain on fire

    CH vs Migraine headache --from someone who has both.

    There it is, hope this helps. If you go to the cluster buster files section you will see a post titled 'A bunch of basic non-busting info'. There you will find what you need to know about docs, tests, proper diagnosis, treatments etc. As I noted above self diagnosis is risky business. Much can go wrong in our brains that cause head pain/headaches & no symptoms should be taken lightly. There are different Hemicranias, for info on them, the types of migraines & types of cluster headaches etc. You can do a web search (e.g. Google). Best wishes on your reading searches etc. If you have questions afterwards ask away. I apologize for it taking so long to get back to you, our lives are sometimes about making it through each day, one foot in front of the other.
  25. Brain on fire

    Dr. Todd Rozen

    Hi all, warnings this is also known as Zyrem. To get Rx your MD is required to participate in a program, you are required to participate in a program, this medication is only available through the Central Pharmacy. It has some nasty side effects. It is primarily used to treat narcolepsy, a sleep disorder.
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