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Brain on fire

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Posts posted by Brain on fire

  1. The Cluster O2 kit CHfather references in your topic titled 'CO2'.  The link is included in the New Users-Read Here First blue banner.

    Edited for correction: The link is in Basic non-busting info in the ClusterBusters Files Section (pinned at the top).

  2. A diagnosis (sometimes a temporary differential diagnosis) is required to prescribe. From what you shared,  it sounds like 'the multiple neuros and results of imaging' failed to provide the  info you need to make informed treatment decisions for yourself... If you believe that is true you may want to get  medical records & imaging study results. Over the years many have learned we must advocate for ourselves. I am often shocked when people take meds with no clue what active diagnoses are in thier own medical records or what (specifically) the meds are prescribed to treat.

  3. Use your oxygen to abort (get on it at the 1st sign) & stay of for about 5mins after you have aborted the attack. Speaking for myself & everthing I've read here a 10/10 is harder for most to abort. You'll find the techniques that work best for you. Many will slam down an energy shot on the way to the oxygen to decrease the time it takes to abort. Ask lots of questions & we'll do our best to assist. Welcome to the life changing benefits of having oxygen!

  4. Welcome Lady Graham, the term cluster migraines is often used by docs who know little about cluster headaches. Based on your user name I'm guessing you are female. Females with cluster headaches are often misdiagnosed with migraines. All thr more reason to avoid using the term 'cluster migraines'. 

  5. Amazing how ch can differ. My attacks began with Kip zero (not having an attack) chronic this was every night/morning: 11pm sound asleep: 11:30pm Kip 9, 5 mins max till it hit Kip 10. 2:30am done Kip zero sleep for 30mins: 3am Kip 9, 5 mins max till it hit Kip 10. 5:30am done Kip zero sleep 30mins: 6am Kip 9, 5 mins max till it hit Kip 10. 6:15am (*in low cycle) done Kip zero time to start the day. *In high cycle the last began exactly the same but ended at 6:45am Kip zero time to start the day. The only daytime attacks I've had were during high cycle & always from no pain to 'Is this the one that will kill me?'. Glad I found clusterbusters is an understatement.***All of that was untreated***