I trust all of you had a wonderful holiday,
I am currently going on my 4th week of cluster headaches and I wanted to share a little bit about my story to see if anyone had any advice.
I have had two other bouts of headaches in my life....once in highschool (10 years ago) and a second time in college 6-7 years ago. Fast-forward...this is my third time struggling with these headaches (now 28 years old) and I have similar symptoms. Pain behind one eye, extends to temples, cheeks, jaw and even neck (all on left side of head). I have some soreness when they are not "full blown". I DO NOT get nausea, balance issues, auras....only the pain.
When I had them the two other times earlier in life, I always had them during the day and I never woke up from them. This time around, I am waking up from them....usually around 2-3 AM and now I get one late morning. My neurologist has not given me a CT scan and seems confident that I am a cluster head.....oxygen is my favorite method of relief and it works very well. He put me on prednisone....which helped a bit but not completely and he gave me a testosterone shot. The pain isn't terrible at this point, but it's still pretty tough of course. I use the oxygen as soon as I feel any pain.....
I naturally have anxiety, so I am of course always concerned if it was coming from something else....especially since it's been so many years since my last bout with headaches. My neuro didn't even suggest a scan and firmly thinks I am in a cluster cycle.
Do you folks have any advice for me on this? My headaches have seemed more scattered this time around than the last two times as well......but this is the first time I tried the prednisone as well.
Your advice means more than you know....Thank you!