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Everything posted by Dana129

  1. So everyone, as the title states, the next cycle is only around the corner, the d3 regimen is staying strong, and I haven’t had any shadows yet, at this time of year I usually have minor and painless shadows as It nears summer here in Australia, my jan cycle has always been worse then my mid year cycle in terms of intensity, I’m quite confident that continuing my use of vitamins will keep it at bay, but, i do have a touch of paranoia, would it hurt to up the consumption of vitiamins per day for the duration of the cycle? Is that common?
  2. Dana129

    Getting closer to my January cycle

    No, not as of recently, the last time I had blood levels checked was 3 or 4 months ago, measured at 77 ng/mL
  3. Dana129

    Life Update

    Amazing, the raves were amazing, would love to go again in a few years
  4. Dana129

    Life Update

    Well guys, I’d like to start with my weight loss, as some of you may have read in my earlier posts, perhaps about 2 months ago now I believe, I had a significant weight gain from 75 kilos to 88 in the space of 4 months from January, where my cycle started, the cycle was only small, but I had dealt with heavy post cycle shadows for a several months. As a result, I stopped going to th gym and began eating very unhealthy, before I knew it I went from being quite fit and athletic to overweight, I am please to say that I am at the half way point, i now weight 81.3 kilos, only 6 more kilos to go before I reach my original weight, I attribute my motivation to lose the weight to living pain free for the last 2 or so months, the d3 regimen has pretty much made me feel as normal as I was before my first ever cycle, It’s the best thing I could’ve ever asked for, also, was going to save shrooms for desperate times, but I figured I may as well add another layer of protection for my brain and have some fun as well, I’ve been hitting the books hard, and my social life is back to normal as...even met a lovely lady on tinder ( ͡° ͜ʖ ͡°). Pretty much, I haven’t been this happy since before my first cycle, and I would say that this forum is the best thing to ever happen to me...I don’t think I’d be where I am right now if it wasn’t for this place, so thank you, now the only painful thing I have to worry about now is having my foreskin cut off PS I’m going to the burning man this year, SUPER EXCITED
  5. Dana129

    Life Update

    still PF and loving life friend
  6. Dana129

    New - Looking for Support

    Haha, nothing to do with the life span, it’s more so the time CH takes away from us, for months at a time and years when you’re chronic, life is called to a halt when clusters return, you’re not living when you’re going through a cycle, hence the quote “life happens between cycles”
  7. Dana129

    New - Looking for Support

    I couldn’t agree more, if there is one thing cluster headaches has taught me, it’s to make the most of every moment you have and to not waste time, life is short enough as it is for people without cluster headaches, it’s damn well even shorter when you’re a ch’r, read a quote that said “life happens between cycles” hit me hard
  8. Well guys the time has come for me to refill my arsenal, as I am running low on supplements the supplements worked fine, but some of the brands were different from batch’s list of personal supplements Would anyone know if Batch might have a complete list of supplements he uses? I know that’s a bit to ask and I don’t want to be the guy on the forum who wants info handed on a platter, but I just want to be a safe as possible and follow batches list of supplements to the book PS reason I’m posting this on the public forum is because I can’t messege batch for some reason
  9. Dana129

    Life Update

    Thanks BOF, thinking about it gets me a little bit teary, I thank God every day this place exists, and that I was born in a time where cluster headache sufferers have the knowledge we have now, without that I’d never be at this point, realistically, to be blunt, I don’t think I would’ve lived past 30 with how clusters were affecting my life, then I found this place, I owe everything to this forum
  10. Dana129

    Life Update

    Another update: still pain free, attended a birthday party and got absolutely shit faced with no sign of a shadow, life is great
  11. I’m very active on the clusterheads subreddit, that place is what lead me to clusterbusters, something I saw really got on my nerves, someone posted a video of a video of a cluster headache attack...and it pretty much triggered the worst anxiety I have felt in a while, the fear of knowing that more then likely I’m going to go through that again at some point, when I was new to cluster headaches, I made a very common mistake and watched videos on YouTube of people having cluster headaches, I wish I never did that, it only made the process of finding out I had clusters more traumatic, the fear and anxiety I felt when watching those videos, particularly that one with that woman who was screaming and having her partner slap her forehead was too much to bare and it made the experience much worse. Although I haven’t yet experienced the heights to level of CH pain, I still live in fear that I’ll one day reach that point...I was quite angry that the person had posted the video, for me, a video of a cluster headache is like a gorey video to people who hate blood and gore, I hate watching them, it’s scary, that’s why I stopped researching on YouTube altogether. I personally don’t think people with clusters, particularly people who are new should watch videos of attacks, there is little to be gained that can’t be gained anywhere else in terms of knowledge, the people that should watch those vids are people who don’t have clusters, to raise awareness and she’d light on what we go through, so I felt like my safe haven had been somewhat breached when someone had posted a video of an attack, nothing wrong with sharing such videos, in fact I admire it, it’s very brave to share that with people online, but subreddits and forums for people trying to seek help and people who are more then likely at the heights of their depression and anxiety due to agonising pain should not be exposed to videos like that, it just isn’t the appropriate forum to post attack videos...anyway that’s my vent, I’m mindful that this may not be a popular opinion, I just felt the need to get that out of my system
  12. Dana129

    Need to vent about something I saw on reddit

    I can relate to that too, for a long time I was filled with so much anger and disgust at the fact that I and many other people have to go through this...even more so, what is so infuriating is that millions of people have this disease, and yet fuck all is contributed to its research, yes, it’s rare, but not rare like progeria, there are many other conditions with the same level of rarity and receiving significantly higher contributions to research
  13. Dana129

    Getting circumcised

    I have Phimosis, basically I have a very tight foreskin and can’t pull it back, I’ve decided to go the surgery route and get circumcised, is there anything that could trigger a cluster? Like anesthetics? I know talking about this ain’t everyone’s cuppa tea, but I’d hate to induce an out of cycle hit when treating this
  14. Dana129

    Getting circumcised

    No worries mate, glad I gave you a laugh haha
  15. Dana129

    Getting circumcised

    My penis is hurting thinking about that
  16. Dana129

    Getting circumcised

    Will do, can’t say I’m looking forward to it...my friend recently got circumcised. Was in a lot of pain 2 days Post circumcision
  17. Dana129

    Getting circumcised

    Very good news fun times, i look forward to reading your update
  18. Dana129

    Gingavitas update

    Well, I just had my deep clean, was scared shitless of triggering an out of cycle hit. Thankfully it didn’t wake the beast
  19. Dana129

    This helped me- hopefully will help others

    I’m glad ur doing well, but be vigilant, the truth is it is not a cure, just a preventative. Not even shrooms are a cure, clusters can change at any given time for whatever reason and break through whatever treatment you are using...now that you have your clusters under control, definitely would be worth while doing the d3 regimen along with preventiative busting (if busting is something u are prepared to do, probably worth it IMO)
  20. Dana129

    Simple Technique to Abort Headaches Right at Onset!

    Good method...but I lowkey just got clickbaitec
  21. https://headaches.org/2018/04/26/bob-wold/ damn this article really hit me hard, especially the start. Thinking about how I was so driven to build a future and make something of myself, to preparing for a life of extreme suffering. Even though I’ve recently started to take control of my life again, losing weight I had recently gained, regaining my focus on studies, and overall enjoying life again for the most part, sometimes things like this article, pull me back into that dark place temporarily. I’ve pretty much had to give up my aspirations of joining the military after university, that’s something I’m very bitter about to tell you the truth. Clusters have really robbed me of 2017 and 18. Within 2 days of my first ever cluster headache, I was already certain what I had was clusters, googling my symptoms, I wasn’t alarmed at all when I read cluster headaches...then, I clicked the article, Suicide Headaches, my heart sank when I read those words, once I had read that article, I knew my life was about to take a turn for the worst. I was so enraged that I pretty much destroyed bed room, punched holes I’m the wall, broke my computer, I had never been so angry in my life...after that I just sat on the bed sobbing quietly thinking about how this is going to destroy my life. I had graduated high school just only a year prior to my first ch...my life as an adult was over before it even started. My January cycle of this year pushed me over the edge big time. Timing could not have been worse, Family troubles, Studies, everything just crashing down on me. Thank God I found this website, I’d never kill myself, but I will say this place saved my life. For now I am back on the horse and doing my best to keep up the momentum, and this website has helped me do that so much
  22. Doing my daily research on clusterheadsches, a video of a woman having a TN attack popped up, she wasn’t really pacing or screaming, (I’m pretty sure that would intensify the pain) but she looked like she was reaching the heights of her pain, and probably would’ve been screaming and pacing if that wasn’t a worsening effect on TN, I read that attacks like migraines can last up to several hours, sufferers can barely move, smile, blink, eat, blink, or touch their face or pretty much make any movements at the risk of making the pain worse, my CHs like most of you would relate to is like my brain is litterrly on Fire, usually last around 30 minutes each, I just can’t imagine experiencing that pain with the additional symptoms of TN. What are your opinions?
  23. Dana129

    Completely new cycle

    Well best of luck with busting, I can only imagine how bad the slapbacks might be, as a younger sufferer it is encouraging to hear people get such long periods of pain free living with that kind of medicine, out of curiosity are you on the d3 regimen?
  24. Dana129

    Completely new cycle

    Hey Cathb357, I just want to clarify, u managed to go headache free for around 7 to 8 years after your first bout at 19? Would you attribute to tripping throughout those years?
  25. Dana129

    New need info

    It really depends on the person, me personally, my worst period is the mid point of the cycle, it gradually lowers in pain intensity and frequency once I’m passed the mid point, everybody is different, though I have heard the worst headaches are at the end for a lot of people. I can imagine you’re having a very tough time right now, so i think you should look into the D3 Regimen. It’s a list of non prescribed vitamins taken daily, it’s highly effective with an 80% success rate of either complete pain free living or reduction, I suggest you research into this, it is cheap, safe and by far the best preventative for clusters, much better then verapamil or any other med a doc will give you, if you look on the new users tab, you’ll find some VERY helpful info to help you break the cycle, busting is also very effective, but I don’t have much knowledge on that personally, the d3 regimen is probably the best thing to ever happen to me, i started it 3 or so weeks ago and it has pretty much changed my life, I haven’t felt so great since before my first ever cycle, even my remmision periods were nothing like this