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Dana129

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Dana129 last won the day on September 28

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About Dana129

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  • Location
    Western Australia
  • Interests
    Love a good surf

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  1. Dana129

    Getting closer to my January cycle

    No, not as of recently, the last time I had blood levels checked was 3 or 4 months ago, measured at 77 ng/mL
  2. So everyone, as the title states, the next cycle is only around the corner, the d3 regimen is staying strong, and I haven’t had any shadows yet, at this time of year I usually have minor and painless shadows as It nears summer here in Australia, my jan cycle has always been worse then my mid year cycle in terms of intensity, I’m quite confident that continuing my use of vitamins will keep it at bay, but, i do have a touch of paranoia, would it hurt to up the consumption of vitiamins per day for the duration of the cycle? Is that common?
  3. Dana129

    Life Update

    Amazing, the raves were amazing, would love to go again in a few years
  4. Dana129

    Life Update

    still PF and loving life friend
  5. Dana129

    New - Looking for Support

    Haha, nothing to do with the life span, it’s more so the time CH takes away from us, for months at a time and years when you’re chronic, life is called to a halt when clusters return, you’re not living when you’re going through a cycle, hence the quote “life happens between cycles”
  6. Dana129

    New - Looking for Support

    I couldn’t agree more, if there is one thing cluster headaches has taught me, it’s to make the most of every moment you have and to not waste time, life is short enough as it is for people without cluster headaches, it’s damn well even shorter when you’re a ch’r, read a quote that said “life happens between cycles” hit me hard
  7. Well guys the time has come for me to refill my arsenal, as I am running low on supplements the supplements worked fine, but some of the brands were different from batch’s list of personal supplements Would anyone know if Batch might have a complete list of supplements he uses? I know that’s a bit to ask and I don’t want to be the guy on the forum who wants info handed on a platter, but I just want to be a safe as possible and follow batches list of supplements to the book PS reason I’m posting this on the public forum is because I can’t messege batch for some reason
  8. Dana129

    Life Update

    Thanks BOF, thinking about it gets me a little bit teary, I thank God every day this place exists, and that I was born in a time where cluster headache sufferers have the knowledge we have now, without that I’d never be at this point, realistically, to be blunt, I don’t think I would’ve lived past 30 with how clusters were affecting my life, then I found this place, I owe everything to this forum
  9. Dana129

    Life Update

    Another update: still pain free, attended a birthday party and got absolutely shit faced with no sign of a shadow, life is great
  10. Dana129

    Need to vent about something I saw on reddit

    I can relate to that too, for a long time I was filled with so much anger and disgust at the fact that I and many other people have to go through this...even more so, what is so infuriating is that millions of people have this disease, and yet fuck all is contributed to its research, yes, it’s rare, but not rare like progeria, there are many other conditions with the same level of rarity and receiving significantly higher contributions to research
  11. I’m very active on the clusterheads subreddit, that place is what lead me to clusterbusters, something I saw really got on my nerves, someone posted a video of a video of a cluster headache attack...and it pretty much triggered the worst anxiety I have felt in a while, the fear of knowing that more then likely I’m going to go through that again at some point, when I was new to cluster headaches, I made a very common mistake and watched videos on YouTube of people having cluster headaches, I wish I never did that, it only made the process of finding out I had clusters more traumatic, the fear and anxiety I felt when watching those videos, particularly that one with that woman who was screaming and having her partner slap her forehead was too much to bare and it made the experience much worse. Although I haven’t yet experienced the heights to level of CH pain, I still live in fear that I’ll one day reach that point...I was quite angry that the person had posted the video, for me, a video of a cluster headache is like a gorey video to people who hate blood and gore, I hate watching them, it’s scary, that’s why I stopped researching on YouTube altogether. I personally don’t think people with clusters, particularly people who are new should watch videos of attacks, there is little to be gained that can’t be gained anywhere else in terms of knowledge, the people that should watch those vids are people who don’t have clusters, to raise awareness and she’d light on what we go through, so I felt like my safe haven had been somewhat breached when someone had posted a video of an attack, nothing wrong with sharing such videos, in fact I admire it, it’s very brave to share that with people online, but subreddits and forums for people trying to seek help and people who are more then likely at the heights of their depression and anxiety due to agonising pain should not be exposed to videos like that, it just isn’t the appropriate forum to post attack videos...anyway that’s my vent, I’m mindful that this may not be a popular opinion, I just felt the need to get that out of my system
  12. Dana129

    Life Update

    Well guys, I’d like to start with my weight loss, as some of you may have read in my earlier posts, perhaps about 2 months ago now I believe, I had a significant weight gain from 75 kilos to 88 in the space of 4 months from January, where my cycle started, the cycle was only small, but I had dealt with heavy post cycle shadows for a several months. As a result, I stopped going to th gym and began eating very unhealthy, before I knew it I went from being quite fit and athletic to overweight, I am please to say that I am at the half way point, i now weight 81.3 kilos, only 6 more kilos to go before I reach my original weight, I attribute my motivation to lose the weight to living pain free for the last 2 or so months, the d3 regimen has pretty much made me feel as normal as I was before my first ever cycle, It’s the best thing I could’ve ever asked for, also, was going to save shrooms for desperate times, but I figured I may as well add another layer of protection for my brain and have some fun as well, I’ve been hitting the books hard, and my social life is back to normal as...even met a lovely lady on tinder ( ͡° ͜ʖ ͡°). Pretty much, I haven’t been this happy since before my first cycle, and I would say that this forum is the best thing to ever happen to me...I don’t think I’d be where I am right now if it wasn’t for this place, so thank you, now the only painful thing I have to worry about now is having my foreskin cut off PS I’m going to the burning man this year, SUPER EXCITED
  13. Dana129

    Getting circumcised

    No worries mate, glad I gave you a laugh haha
  14. Dana129

    Getting circumcised

    My penis is hurting thinking about that
  15. Dana129

    Getting circumcised

    Will do, can’t say I’m looking forward to it...my friend recently got circumcised. Was in a lot of pain 2 days Post circumcision
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