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About Zoejarvis

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    Edinburgh, Scotland
  1. Hi Siegfried, I read your post about Indomethacin, it's great to read some good news on these kinds of forums. I too suffer from Hemicrania Continua, this was undiagnosed for a year until i saw a Neurologist and my doctor prescribed me Indo, he said, take this for 2 weeks and if it significantly reduces your attacks/stops them, then you will have a condition under the TACs Umbrella - HC,CH, PH etc... I took my first course of 1 25mg 3 times per day for 1 week and then increased my dosage to 2 25mg 3 times per day for a second week, this concluded my 'Indo time'. During this time i suffere
  2. The side effects seem to have subsided but it’s not helping my clusters at all. They’ve become more frequent which unfortunately as you all know isn’t good. I’ll stick it out until I see my neurologist, I’m not brave enough for the whole busting thing! Appreciate your input guys, thank you!
  3. Thanks Mox, I’m sorry to hear that happened to you! I don’t know what they will try me on next because this can’t continue, I’ve had 3 attacks today so far. Shame my neurologist appt isn’t for another 6 weeks! It’s nice to know by reading this forum I’m not alone! Have you found anything that works well to keep them at bay?
  4. After 6 months of suffering from CH once, maybe twice every 2 weeks I was diagnosed with Cluster Headaches. The pain was so severe it was like nothing I had ever experienced before. I was to and from the doctors so many times and left with strange suggestions as to what it could be. After one night when I had 9 attacks on the bounce I went to visit the doctor again, it was then he advised it was CH and I was prescribed 25mg of Topiramate on the proviso that it would help improve the severity and frequency of the attacks (this was about 6 weeks ago). I had an MRI scan and I am awaiting re
  5. After 6 months of having (what I now know to be) cluster headaches (after MANY mis-diagnosis’s) I have been prescribed Topiramate after being unable to take the pain anymore. Currently awaiting the results of an MRI scan to see if there’s anything going on up there and then pending visit to a neurologist! I have been on the good ol’ Topiramate for just over a week now and the feelings of confusion, constant tiredness, exhaustion and vacancy seem to have subsided - it was intense for the first few days and I questioned whether I could remain on the tablets however I feel my body could be
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