Claudia09

I was diagnosed with Cluster Headaches in Jan 2019. Since then, I've only had 3 short episodes, the first one being the worst. Since the first major episode in early 2019, I've been lucky and only had two one-week less-severe bouts. However, my left eye continues to be extremely swollen underneath... it's like a small lump below my left eye. The swelling just won't go away. My last one-week episode was four months ago now and still, I have major swelling under my eye. Plus, just this last week I noticed a bit of chemosis on my left eye as well. I'm wondering if this is related at all to having suffered from clusters or if anyone else has these long-lasting affects. I am going to the eye doctor to get it checked out but just seems too much of a coincidence since it's the cluster side of my face. Any advice is very welcome!

@MoxieGirl This was sooo helpful thank you! Good to know about the KIP scale. Already be on this forum for just 1 day has been so so helpful. I feel good to arm myself with knowledge! My only other question was about 'monster' - what is that?

Hi everyone! New here - what is 'monster' ? "Beating them with 'monster' "- i've seen it a couple of times. Also what is busting? Need some help with the terminology : ) Thank you!

Hi! I'm brand new here. Glad to know at least I'm not alone. I'm a 31 yr old female. Started having nightly / every other night cluster attacks about 2 months ago (nearly all between 2-4AM) - the 'pain' phase lasted for a few weeks, took a break, came back just once in a one-off night attack and now I just continue to have the 'symptoms' of attacks but no pain --swollen droopy eyelid, clogged nostril, etc. I've been pain free for 2 full weeks now. However, every morning I wake up as though I had an attack the night before. Sometimes too, around 10PM, the eye will swell, pupils get small and I go through all the motions of having an attack without the headache pain. I am SO thankful that the pain is not accompanying the attack, but was curious if anyone else has experienced this? Would really love to hear from you all as I'm new to this and trying to figure out how to manage the symptoms and the overall disease.