Just checking in.
- 5 years cluster free after being chronic 8-10 daily and seconds away from ending it all. This site saved my life and I'm grateful.
- took 17 tries of MM dosing every 5 days to finally get relief. ( learned about dosing here)
-low histamine diet . I literally don't eat any foods with high histamines. Stopped eating meat as well.
-stopped drinking alcohol (major trigger)
- lost a lot of weight Initially but I have found foods I can eat to maintain a healthy diet
-still maintenance dose at least 1-2 times a month.
-if my d3 gets low or I don't maintenance dose I feel signs of pain. (Sickness, allergy season)
- I realize food is a major trigger so I'm very cautious and eat very limited items which can be very very difficult at times but I'll rather eat blackberries for example then have a cluster any day.
other triggers include
- smoke of any kind (this sucks because everyone smokes and this includes hookah smoke)
- extreme heat
overall, the d3 regimen, avoiding histamines, dosing consistently and avoiding triggers have helped me be cluster free. Ironically, MM helped me with bipolar disorder. I stopped taking all of my bipolar meds. They're truly magic. Am I cured, ABSOLUTELY NOT but am I able to live a normal pain free life yes. At times I am very isolated from the world as I fear being triggered which sometimes is difficult but the fact I can be father to my kids is more important . Clusters have taught me to appreciate everything. Truly living between the headaches. I don't take a day for granted and wanted to send hope to anyone who may need it.
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