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Hi all, First off, I’d like to say I am so grateful to have a place like this that contains so much info pertaining to cluster headaches. The wealth of knowledge and others’ experiences are priceless and have gotten me through some of the most trying times of my life. I am so sorry that anyone would have to go through this pain, but it helps to know that I am not alone in this struggle. Finding this site some years ago was a godsend. My story, oddly enough, began around the age of 15/16 when I experienced my first EXCRUTIATING (which I feel is putting it mildly) headache. It was the
Greetings from Canada! I am a newly diagnosed/in process CH patient and I'm really happy to have found this forum. Until my first attack 4 years ago I had only ever heard the name cluster headache (via Lisa Kudrow, of all things) but I knew nothing about the pathology. Now I've gotten some info but also many more questions that I think can only be answered from experience - and it sure goes a long way just to talk to people who understand. I've already walked this path having spent 17 years getting a diagnosis for severe REM sleep apnea and my son has a very rare sleep issue himself. I ha