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tonanty

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Everything posted by tonanty

  1. Hello guys, does anyone also get the headaches only once a day usually? when im in cycle i usually just get it once a day in the morning around 6:00 am maybe its not CH after all...
  2. tonanty

    After 3 1/2 years the Deamon is back...arrrgh

    I would get my hands on some MM(cheap , fast + natural) ..also there is a new drug that wasnt available 3.5 years ago its called emgality and a 300mg shot seems to reduce or abort episodic clusters, go to a specialist.
  3. i cant wait to read this bust report!! please provide details like what kind of MM and doses too (if you remember)
  4. six times a night ? that sounds absolutely AWFULL that what i imagine hell looks like. whats ur CHs now with MM?
  5. Hey guys i wanted to share my two cents for you because it may help some! i know everyone is different but one year while dealing with a bad cycle i had a trip abroad (7hr time difference)i was only 3 weeks into my cycle and my headaches stopped as soon as i was in the new time zone. *i did have some shadows following days but the cycle just stopped! it could be from high morale and good psychology of being abroad after 3 weeks of hell but scientifically the bodies clock is linked to CH so it would make sense to have a relationship with time on my next cycle i will definitely experiment with skipping sleep etc...
  6. My CH cycles i usually get 1 a day always around 6 to 9 am ... the plane was 8 hrs the same day i did not get any attacks but nor did i sleep during the 8 hrs! A study showed that ginger capsules can be as effective as sumatriptan i took one every 4 hours that day and I've been taking one capsule a day when im off cycle try it yourself and let me know if it works for you also!
  7. The wait is usually about a month but i constantly had to push it back because i travel between Europe and America constantly so it took me 3 months. I'm off cycle so i did not have the injection i was told to keep them in my fridge and take it as soon as i feel a shadow she only requested an MRI. i recommend her i feel like she has a lot of experience w ch especially from her using terms like shadows and stuff that we use here. Both my uncle and aunt are doctors with 20+ years experience and they cant distinguish a migraine from a CH because they are simply just not aware of the condition.i lived 5 years thinking i would have periods of migraines that would suddenly disappear now it all makes sense to me it was cH all along..so seeing a specialist is important!
  8. yes i study in Chicago so i live here... Just had my appointment with dr diamond and diamond clinic after a fe months of waiting. Apparently Emgality is a very effective treatment for stopping cycles for both episodic and chronic.Its a new drug so not many people know about it. Hopefully they dont come back but if they do ill see if it actually works
  9. Its called diamond head clinic in chicago
  10. Aince MM how often do you have them?
  11. i am 23 now..... i do have childhood memory of being maybe 5 or 4 and experiencing one sided pain one morning.... it never came back until i was 15 and i had the same one sided pain every morning for about a week.. then it was totally gone until my last year in high school (4 years after the last) it was terrible lasted 2 months i thought it was permanent and that i would have to live my life like this....ever since ive been getting them every 2.5 years they lats between 2-4 weeks... although i do recretionaly experiment with pschadelics alot so that may be the reason why my cycles are so far apart and usually bearable. do u know if CH gets worst with age:( ? i live on a small Mediterranean island so i dont really trust drs with such rare condition so i will be going to another doctor in america on august 15th! and will get scans also...
  12. during a cycle do you know if its common for the time to shift for example the first week i may get them at 6:30 am and then the next week it moves up to 8:00 am everyday .. also thank you for being so responsive on this blog
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