Hi Batch! I just officially joined this site but have been reading posts for weeks. My headaches started in 2014 and I had no idea what was happening. Was en route to the ER one night because I literally thought I was dying but the pain eased just enough for me to realize I wasn’t.
After an MRI and CT scan I was diagnosed with migraines (no surprise right?). But after doing my own research I was convinced it was CHs. I’ve never been nauseous or demanded a dark room. My only relief is a 6mg sumatriptan injection and I know I will have relief within 3 minutes.
I live in hot, humid south Mississippi. I always have cycles in July/August. In 2017 I started receiving Botox quarterly for my “migraines” and didn’t have any issues until the end of July 2019. My doctor prescribed a round of steroids, Ajovi shot and 4 torodol pills. I started taking Topomax last weekend. The nurse told me the dr finally put in my notes that I’m having CHs (I’ve known this for years).
I finally accumulated all the vitamins you suggest but then realized I may need to be on a ramp dose? Also realized my multi doesn’t have boron. However, I’m a 5’5”, 114 pound female and want to confirm with you exactly how much of what I should take.
I clench my teeth while sleeping and I am also narcoleptic and have sleep apnea! Yes, I’m a neurological mess for an otherwise healthy 43 year old. My husband is a pilot in the military, I have a full-time job and I have 2 sons. The current cycle has interrupted my/our lives more than any of the others. The day after headaches has been horrible this time. I’m absolutely exhausted. Is this from the CH or the medicine?
I greatly appreciate any advice you can give me!!
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Howzit? Have you started the anti-inflammatory regimen. Did you start it with the 12-Day accelerated vitamin D3 loading schedule at 50,000 IU/day vitamin D3 for 12 days?
Take care and hugs,
Funny you should ask - I was coming here to reach out to you. I did the accelerated dose for 12 days but I did 35k-40k IU because of my weight. I had a few excellent days well into the regimen. I started doing 10k IU day on Saturday the 7th. And Monday the 9th (a week ago) I had a full blown CH and another one last Friday. I’m currently fighting a baby CH, possibly a shadow?, right now. Should I increase the D3 again? I also don’t eat a whole lot so maybe my body is having a hard time absorbing the vitamins and keeping my levels high?
I know I need to have labs drawn but I’m trying to figure out the easiest way to do that. Speaking to anyone at my neurologist office is almost impossible.
Thanks for reaching out.
Thanks for the status uipdate. I would bite the bullet and take the full loading dose at 50,000 IU/day for 3 to 5 days. If your 25(OH)D has yet to reach a therapeutic level, the loading doses should help. If the CH beast is still jumping ugly, load for a few more days. I just read a case history of a 22 year old male who presented with seizures.
Calcium 1.30 mmol/L
Phosphate 0.65 mmol>L
25(OH)D < 10 nmol/L
DX: Hypocalcemia secondary to Vitamin D Deficiency
He was treated with 500,000 IU/day vitamin D3 for four days (2 million IU) and IV calcium. He walked out of the hospital in great shape/
My wife is a 115 pounder and eats like a bird. She took 15,000 IU/day from her start on this regimen and that has kept her migraine pain free since 2010. She dropped back to a maintenance dose at an average of 7,000 IU/day alternating between 10,000 IU/day and 5,000 IU/day two years ago and has remained migjraine free.. Her serum 25(OH)D stayed constant at 120 ng/mL at a maintenance dose of 15,000 IU/day and is now down to 97 ng/mL at an average maintenance dose of 7,000 IU/day.
As to where to go for your lab tests of your serum 25(OH)D, calcium and PTH. I would start with your husband's flight surgeon or the nearest military medical facility.
If push comes to shove, the magic word to get these lab tests. is "Hypervitaminosis D". Tell the doctors you've been taking 50,000 IU/day vitamin D3 and want to make sure your serum calcium is still within its normal reference range. This works every time...
Take care and please keep me posted.