My husband found this site for me so I can talk to other sufferers. For me this all started mid july and I didnt know what was going on. Red eye. Stuffy nose and severe pain behind eye. Went to my primary dr and they said sinus infection. After 1 month and 3 different antibiotics they did not go away. It happened everyday right around dinner time, I even tried not eating to see if that helped. I googled daily to come up with diagnosis and all the symptoms matched CH. I saw a ENT first to check sinuses and was given all clear. Found a neurologist and he looked at a previous brain mri and said all looked normal. He started me on verapamil and oxygen. Oxygen took forever to get approved by insurance but finally got it. Verapamil did not work for me so they gave me shots of emgality and it's been 3 weeks and no relief yet. I will do next injection December 11. I get 1 to 4 a day now versus 1 when this started. I have nose sprays for emergencies when I'm out running around and also have 5mg tablets. And to add to all of this just turned 52 and in full blown menopause with numerous hot flashes which I think sometimes triggers a headache. I have not read anything about ch in relation to menopause. My indication it's coming is my upper gums start throbbing then ear and into eye. Also is it normal to just feel crappy all over even when not having a headache. I feel trapped on my own home because of this and at my wits end. Glad to know I'm not the only one.
