dehabel

I can’t take it any longer. Finished the three days of steroids. Fourth day they are back. Anyone have luck with Emgality?

What are DMT aborts?

Thank you for the response. I was doing the D3 regime but it was not doing anything for me so I got a little lax in taking all those vitamins. I take Benadryl at night and have done two rounds of steroids, the dexa one not prednisone. The dr put me on Indomethacin but it did nothing. This has been a rough one. I am afraid it is never going to end. Have you heard of another round of steroids knocking it out at this time?

I am what I thought was the end of my cycle. I thought it would be over about two weeks ago, but I keep getting headaches every couple of days that are kind of minor. If you will, they don’t make me scream at the top of my lungs and I can sometimes talk myself out of them without taking a shot. Has this happened to anybody else? I don’t understand. I don’t remember this happening before. I just am starting a new round of steroids three days of that one that starts with a D Dexy something.

Okay do I have had a really long spell, which I thought was ending two weeks ago. It stops then I get pretty mild ones in the evening/middle if night. Then nothing for a day or two. The mild in middle of night. When I say mold, I mean I am not screaming. Sometimes I take a shot, sometimes I talk myself off the ledge. What the heck??? I am taking another round of steroids to see if they leave. Has this happened to anyone?

Thank you! This is the craziest spell ever.

Hi fellow sufferers, I have a question. I’ve had five years of pain-free and all of a sudden I’m getting another cycle, but it’s super weird. Usually, I can tell during the day that it’s coming I get little twinges of pain that are different than normal and then the cycle will start. This one just started full on waking me up in the middle of the night with with a headache. So I started that vitamin D regiment and in the past two weeks I’ve had three that just wake me up in the middle of the night and that’s all that happens. I don’t get them multiple times during the day. I don’t get them multiple times in the night, it’s just one headache for about 30 minutes three times in two weeks has this ever happened to anyone, do I have cause for concern like this different than a cluster headache? I do need to say that my head does feel weird during the day. It feels like weak. I don’t know how else to explain it. It feels weak, and that is normal during a cluster spell. Thank you, Chrissy

Kat, I am so sorry. This pain is so much. I am assuming you did the steroids? What about Emgality? Y soell is over and I do not know whether it was the D3, the steroids, or end of cycle. Hopefully, he can give you something on Weds. fingers crossed for you. Chrissy

One capsule 240 mg extended release at bedtime. Neuro put me to 120 mg for one week then I can quit. No, I have not taken blood pressure, I do not get dizzy just the concrete in my head feeling.

I did not. I will call new neurologist this morning. Thanks.

Thank you! I am about to stop my verapamil I hate it!

OMG, so I remember hating verapamil, but I can't really remember everything I hated. Is it normal for my head to feel almost disconnected from the rest of me...not really sure if that is the way to explain it. It is almost like numb or something. Like I am not all there. I am going to stop it, I feel like my spell is done anyway and I just can't take the side effects. Tonight is my last 10 mg of prednisone and there has been no inkling of cluster in almost two weeks. When I was younger I remember I would start and stop verapamil at will, is there a reason I can't stop taking it? I am on 240 mg extended release and I take it at bedtime. Not happily, I might add.

Kat I am so sorry you are having a hard time. Can you tell me about the whole multi vitamin and verapamil thing? I take them all together. Thanks, Chrissy

I think it was just for protection from getting sick.

Batch told me to take Vitamin C with the D3 regimen.