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TimothyH

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TimothyH last won the day on May 12

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About TimothyH

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  1. Thanks, I definitely want to get the O2! Here's the page she pulled up on lidocaine nasal: https://clusterbusters.org/resource/home-instructions-for-intranasal-lidocaine-sphenopalatine-ganglion-block/
  2. Thanks! I felt very prepared to go to the appointment with all the knowledge I've learned from these forums! Neurologist was knowledgeable and helpful. Happy to write a prescription for high-flow 02 and asked the staff to start looking into supply and insurance. She also gave me Rx for 2% viscous lidocaine - and she pulled up the ClusterBusters website to show me where to find instructions how to use it intranasally! And gave me samples and Rx for Sumatriptan injection. And she will increase Verapamil if needed. Since I've never had an MRI, she suggested I could do that with a focus on th
  3. Huge fast breathing worked for me yesterday! I've been in a cycle of attacks for 12 days, taking Verapamil, and asked to get prescription of O2 but doctor said they don't prescribe that. (Going to see neurologist today to see if they do.) I started getting a daytime attack yesterday morning, and started "hyperventilating" if that's the right word - taking huge deep breaths, sucking air in and pushing it out rapidly, to try to mimic what I've seen people post about using O2 for attacks. Attack aborted in about 5-10 minutes. Started coming back half hour later, so I did the breathing again,
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